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‘I found myself drenched in sweat in the middle of the night. The doctor said, ‘You look perfectly healthy, but on paper you would terrify any doctor.’: Woman details brave journey with Ehlers Danlos Syndrome, Addison’s disease

“My doctor came in, her tone solemn and harsh. She was about to give me a serious dose of reality. She looked me straight in the eye and said, ‘Listen, people with this have died from a minor dental procedure. If not treated and monitored properly, it will kill you.’ I was 35 years old, trapped in an 80-year-old body.”

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