Congenital heart defect

‘Either pregnancy is harder with age or we’re having twins.’ Our son with down syndrome had just battled multiple heart failures and a stroke. ‘Actually, there’s 3.’ Um, excuse me! What the heck?!?!’ Mom delivers baby with Down Syndrome & heart defects, gets surprised with triplets 1 year later

“We went silent until I could finally ask him how sure he was. ‘Beyond 100% certain. Triplets.’ I was in tears instantly. Our life felt like a TV show playing out in real-time. How can we handle triplets plus making sure we meet our son’s medical needs? How can I continue to work full time? Do we need a bigger car? House? How is this going to work?! Excitement quickly followed. We accepted the challenge.”

‘What does a baby’s heart look like at 18 weeks?’ I knew something was wrong. But Tad’s father continued to say, ‘Don’t worry until we have to.’ So I tried my best not to.’

“‘He is sitting Buddha style facing away from me, so I cannot not get a good look.’ I remember watching him confirm the gender, check fingers and toes, but kept going back. He told us ‘not to worry.’ I left that appointment wanting to share the great news of, ‘we’re having a baby boy,’ but it was a double-edged sword.”

‘I think Evely is blind,’ my husband said. In my dreams, she had big, brown eyes. Turns out, she had NO EYES.’: Mom gives birth to baby with Anophthalmia, claims ‘my child who is blind is teaching me to see’

“As parents, we often have this pre-conceived idea about our children. What they will be like, how they will look. It can be devastating when the picture doesn’t end up looking like the one we drew in our minds. But just because it looks different, doesn’t mean it will be any less sweet. In fact, it will probably be better than the picture you created.”

‘Evan was suddenly tired. I truly thought he’d caught something in Mexico on our honeymoon. The word was Leukemia.’: Inferile couple adopt son, say he ‘doesn’t carry our blood, but carries our whole heart’

“We were given the news that chemo would cause us infertility. Always being the patient, I’d never known what it meant to be on the other side of it. To watch your loved one suffer and feel so completely helpless your insides were miserably aching. But that was all about to change. How did this happen? What about all our plans and the family we were going to have? I was headed down the road to be a widow before we even had a chance to experience marriage.”

‘He’s here, he’s breathing, and he has a TON of hair!’ The joy only lasted for a moment. Our son was ready to shake things up at the hospital.’: Mother learns of son’s rare Cornelia de Lange syndrome diagnosis

“There was silence. She smiled, turned off the screen, and said she would be right back. I looked at my fiancé with tears in my eyes. ‘I knew it.’ They told us our baby would have some sort of syndrome, and we had ‘no choice’ but to continue with the pregnancy. I remember feeling angry at that, ‘no choice but to continue.’ As if they had already deemed his life to be unfit to continue.”

 Share  Tweet