Congenital heart defect

‘We got the horrifying call in the middle of the night: ‘She’s bleeding from her mouth and we don’t know where it’s coming from and can’t stop it.’: Mom shares grief journey after losing twin to rare heart defect, DiGeorge Syndrome

“She’d been taken in for emergency surgery. The bleeding seemed to have slowed, but they still hadn’t found the source. ‘She’s losing too much blood and I don’t think she’s going to make it.’ But she wasn’t gone…there was still hope. The next time the doctor came in, all hope was lost.”

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