“We were having a baby 6 weeks early. ‘I need to hear her cry!’ I entered the world of the unknown.”
‘Her heart’s on the wrong side.’ She held the tip of my finger. We thought we beat the odds.’: NICU survivor diagnosed with Cerebral Palsy, ‘One day she WILL walk’
‘Something’s happened to Drew. We were on our way to the park.’ I thought, ‘He’ll be OK.’ I had to keep my promise to him.’: Woman with CHD becomes advocate after losing nephew to disease
“The doctor said, ‘Time to pray.’ She’d never seen so many tubes in such a little body. They filled with blood. ‘We’re having a problem.’”
‘But the other children are doing well!’ I’d go anywhere for him. ‘Someone must have a solution!’: Mom loses son to heart defect, starts retreat for other child loss moms, ‘It’s our way forward’
“They wanted to do multiple surgeries. The words coming out of their mouths made me physically sick. I was left in a puddle of my own tears on the hospital bathroom floor. I told him if there was help on Mars, I’d buy a rocket ship.”
‘We can’t do anything else.’ I was 18 with a deceased baby. They pulled a drain tube out and her little belly filled with blood.’: Teen loses daughter to congenital heart disease, donates 455 oz. of breast milk to save sick NICU babies
“She had open heart surgery at just 1 day old. I was terrified. My little girl was on full life support. ‘Why would God give me a sick baby?’ She was bleeding out. I decided to turn something so painful into something beautiful. Even though I couldn’t save my baby, I decided I could save others.”
‘You can’t put me in ICU Room 6. My mom just died there last week.’: Young woman miraculously survives pulmonary embolisms just one week after mom dies of ‘broken heart’
“I lost my best friend. ‘What am I supposed to do now?’ All I’d ever known was taking care of my mother. Suddenly, I felt a tightness in my chest. ‘Well here is the panic attack I’ve been waiting for since she died.’ I arrive at the ER. The doctor came in. I remembered her. She was the doctor who admitted my mom. My heart rate shot up in panic. I looked her right in the eyes. ‘You can’t put me in Room 6. My mom just died there last week.’”
‘The magnitude of your child being born. No words. She did this for us, TWICE.’: Mother overcome with emotion watching surrogate deliver second daughter, ‘I gained a bond I never even knew existed’
“It was 6 months post my 4th open heart surgery. I was celebrating turning 26, a milestone my mother and doctors never thought I’d reach. That night, I met Ryan. ‘You don’t want to be interested in me. I have a lot of baggage.’ He replied, ‘What do you mean?’ ‘I’m probably going to die soon.’ Within 8 months, we were engaged. Not everyone approved of us looking for a surrogate, you know, because ‘I might die soon.’”
‘We begged her to let go. She kept fighting to stay with us. ‘We’ll be together soon. You need to go home,’ we said.’: Mom says daughter suffering from CHD ‘passed peacefully in my arms,’ is ‘finally at peace’
“We went to see Cora for the last time. I washed her hair and gently cleaned her body with a washcloth. I dressed her in our favorite headband and swaddled her tightly. Her sister gave Cora a kiss on her forehead. We told her to say goodbye. ‘Bye bye, Baby Cora.’ My mom took our eldest away so she could pass with my husband and I alone. She was so beautiful, looking at us with such deep love in her eyes.”
‘Dear teacher, I need to apologize for my wife and I. We are going to be knee-deep in your business.’: Self-proclaimed ‘helicopter parent’ pens touching letter about why he’s overprotective of son with congenital heart disease
“His lips get blue when he’s cold, but he’s ok. I have watched his heart stop, 3 times. If you ever have to change his shirt, you’ll see the proof. Be cautious with how the other kids discuss it. He’s proud of it now – but if you let another kid steal that pride, you’ll hear our parental helicopter blades ripping through the air.”
‘I have a huge favor to ask. I’m in the ER. I can’t leave my daughter alone, but I really need a coffee.’ I was blown away.’: Single mom touched by act of kindness during daughter’s open heart surgery
“My baby needed a heart transplant. I’ll never forget the compassion I was showed at my most vulnerable.”
‘My husband and I watched in horror. ‘Don’t worry, he’s going to be okay.’ I nodded, but all I could think was, ‘NO, my newborn just had heart surgery, NONE of this is okay.’
“Every day I wonder – is today the day we get the call there is a heart for Max? Is today the day my son gets a second chance at life? He is still fighting hard. We refuse to give up on him.”
