Cornelia de Lange syndrome

‘Through screaming, I coded at 1:25 p.m. 5 minutes later, my son was born not breathing. He was bagged and taken for CPR.’: Mom births baby with rare apert syndrome

“The next thing I knew I felt like I was drowning. I could hear codes being called as my birth got harder to take.‘He’s not fatal, but we have no idea what’s wrong.’ He had 10 fingers and 10 toes, but they were fused together. A first-time mom, I feared I was going to break him. Every irrational fear went through my mind.”

‘She said I’d be a great foster mom. ‘Me?! Isn’t that for young people? We are grandparents, for goodness sakes!’: Grandparents take leap of faith and become foster parents

“We haven’t located any family.’ ‘When will we get her?’ ‘Tonight. Now.’ At 11:30 p.m., we brought our foster daughter, Laycee, into our home. Six months later, we got another call. ‘Mrs. Morgan? We have a 3-year-old little boy in the PICU. He’s been here 6 months and needs a home.”

‘He’s here, he’s breathing, and he has a TON of hair!’ The joy only lasted for a moment. Our son was ready to shake things up at the hospital.’: Mother learns of son’s rare Cornelia de Lange syndrome diagnosis

“There was silence. She smiled, turned off the screen, and said she would be right back. I looked at my fiancé with tears in my eyes. ‘I knew it.’ They told us our baby would have some sort of syndrome, and we had ‘no choice’ but to continue with the pregnancy. I remember feeling angry at that, ‘no choice but to continue.’ As if they had already deemed his life to be unfit to continue.”

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