craniofacial differences

‘They put him on my chest for the first time. The doctors did a double take and immediately took him back. ‘Treacher Collins? WHAT?’: Little boy with Treacher Collins Syndrome spreads kindness and acceptance

“FINALLY! I was induced, and FOUR days later, PJ came out! His dad and I cried tears of joy. Then the doctors did a double take and took him away. I thought he was the most beautiful boy, but I feared how he would be treated by other kids. He will always look this way.”

‘She wasn’t getting enough air. She was almost gasping and was quite purple. It was pure torture.’: Woman gives birth to baby girl with Treacher Collins Syndrome, ‘Her disability won’t hold her down’

“I noticed her ear looked small, but I chalked it up to the typical squishiness of a newborn. ‘So what? What is the point of showing me her differences?’ She has underdeveloped ears, cheekbones, and jaw that make her appear a little different than most of us. I just stared at her in awe, with nothing but love and admiration.”

‘Why isn’t anyone congratulating me? Sadly, my daughter’s arrival wasn’t celebrated.’: Woman gives birth to baby with Treacher Collins Syndrome, ‘our normal is different but I wouldn’t change it for anything’

“I was excited and ready to meet our baby girl! I realized something was not right. I said, ‘What is happening?’ Why is my husband so confused and scared? Why can’t my mom look at me? Why did my doctor step out? No one said a word. The silence tore me apart. I finally got a glimpse of Bella and… she looked ‘different.’”

‘I swallowed my own tongue and went blue. One week into school, the bullying began. ‘Why should I be moved and not them?’: Teen with Treacher Collins Syndrome urges ‘we are all unique and amazing in every way’

“I was born with no ears, no cheekbones, and a receding jaw. Food and bottles were thrown at me. It got to the point where they would trip me and pin me up against walls. I used to come home from school every day crying, but still the school did nothing. Instead, they moved me to another class. ‘Why should I be moved and not them?’ The bullies took over my life.”

‘What’s wrong with her? Can it be fixed?!’ I had wide-set eyes, webbed fingers. People can’t help but stare.’: Woman meets child with similar Craniofacial differences, ‘I hit the jackpot and found belonging’

“I’m a closet Web MD researcher. I typed in all the things I was born with and a term popped up. Low and behold, there were kids all around the world that looked like me! I’ve always made up wild exaggerations as to why I was born this way. Now, I need no answer. For the first time in my life, I can say, ‘Me too.'”

‘Excuse me, my child has a question about your face.’ Others pulled their kids away like I shouldn’t be looked at.’: Woman with Craniofacial differences reminds us to use ‘kindness’ to approach uniqueness

“In middle school, kids started to stare and ask, ‘Why does your face look smooshed? What’s wrong with your nose?’ My mom would tell me how pretty I was and I’d always say, ‘You’re my mom, you have to say that.’ I’d spend so much time buying cuter clothes, different makeup, more jewelry to overshadow my face. But when I stripped it all down, my confidence was gone.”

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