Crohn’s disease

‘Flesh was hanging off the roof of his mouth. ‘Your son has no immune system to fight this.’ We were trapped inside the house for months in total isolation.’: Mom to medically complex, autistic sons urges ‘find your village’

“His lesions were so severe he couldn’t eat. Rashes covered his entire body. We had to inject him with Pedialyte every 15 minutes just to keep him from passing out. In the midst of trying to be a normal family of 3, we suffered 3 miscarriages. Here we were, emotionally and physically exhausted, still yearning for hope. Little did we know, after 11 pregnancies, baby B would surprise us with blood in his diaper at just 2 months old. We knew something was terribly wrong.”

‘No cure? Like forever?’ I’ve been shot in a drive-by shooting, and I’d still take that pain over Crohn’s. I was so angry.’: Young woman learns to live with invisible illness, ‘It’s not the end of the world if you have to pull over, or ruin a pair of pants’

“Suddenly I could not keep any food inside of me, from either end. I was losing weight fast. The weather was nice so my boyfriend and I went to a restaurant on the waterfront for dinner. Afterwards, he took the long, scenic way home. I was in intense pain and needed to get to a bathroom. We finally arrive and he insisted on walking me to the door, not realizing I was ready to sprint. The minute I shut the door behind me, I projectile vomited all over the entryway. I became a homebody. I was accused of things like, ‘You just want pity. You’re lazy.’”

‘It snapped me awake. What I thought was snoring, was actually the ‘death rattle.’: Woman remarries after high school sweetheart’s sudden death, creates big, blended family with new husband, ‘I love my husband’s ex-wife’

“I found myself breaking my set of rules with him right away. I never got in a car with someone. I went for a drive with him on the first date, to the middle of nowhere, to ‘look for owls.’ I told him to invite Meredith (his ex) over for Christmas morning. He was confused. I love my husband’s ex-wife.”

‘Doctors: Don’t expect him to crawl, walk, or walk. Cash: Hold my sippy cup. Watch this.’: Mom feels ‘lucky’ to parent son with Down syndrome, ‘he has taught us all to love wholeheartedly’

“The doctor was cold, rude, and uncomfortable. He ignored my husband every time he tried to speak and suggested we ‘put him up for adoption.’ Yet, NO ONE agreed he had Down Syndrome. We looked at his little almond-shaped eyes and back at each other and just KNEW. Our lives didn’t ‘fall apart.’ We didn’t ‘mourn’ the loss of a ‘perfect’ baby. We were just so in love.”

‘I was a single mom, had 3 fatherless WILD boys, and major baggage. But my daughter is destined for great purpose.’: Mom finally ‘blessed’ with baby girl after 3 boys as a single mother, teen pregnancy

“Single motherhood was rough. The judgement was hard, and I lost friends. Having 3 children while unmarried is frowned upon, especially here in the south. People never took the time to find out why I had 3 children this way, because they had their own assumptions. I didn’t think I’d find someone who’d want to marry me. Then I met Josey. 5 months later, we were married. The emotion was too much. Finally, a daughter.”

‘I love you. It’s not your fault,’ my mom said, crying. I screamed, trying to keep her awake until paramedics reached her.’: Daughter says losing mother to suicide was ‘the most painful experience I’ve ever gone through’

“A friend of my mom said, ‘Look, your mom came to make December beautiful again.’ It’s so true. My daughter is the light of my life. It’s emotional raising a daughter without my own mother alive, but I understand now I would not have the beautiful life I have today if she hadn’t passed.”

‘What now?,’ is all that ran through my mind. ‘How did this happen to me?’ All the voices in the room disappeared. I was washed on a metal table with hoses that hung from the ceiling.’

“He instilled in my mind there was better out there. Someone who he didn’t have to help when I wasn’t feeling well, someone who he didn’t have to go to the ER with, someone who was ‘normal,’ who’s body was not scarred up. I said to my dad, ‘I can’t do it anymore. I can’t take this anymore.'”

‘At 12 years old, symptoms began to manifest. I had joint pain in my knees and mouth sores on my gums. Food gave me belly aches. Aside from winter colds, I never was sick.’

“My parents were concerned. I had lost weight and they could see changes in me. I was 13 now, in the hospital to stabilize my 80-pound body. My parents were frustrated I followed ‘the rules.’ ‘If I thought the day of my diagnosis was life-shattering, this day would change the whole trajectory of how I lived my life.”

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