Crohn’s

‘Every morning I trudged, syringe in hand, to get stabbed in the abdomen on an exam table while my classmates grabbed Starbucks. I began silently screaming, ‘Why me?’: 19-year old diagnosed with IBD, ulcerative colitis advocates for change

“I was warned about the freshman year dorm life and told where to go for mental health counseling if exams became too stressful. I was not told what to do, how to continue, or who to turn to if I was suddenly forever ill.”

‘No cure? Like forever?’ I’ve been shot in a drive-by shooting, and I’d still take that pain over Crohn’s. I was so angry.’: Young woman learns to live with invisible illness, ‘It’s not the end of the world if you have to pull over, or ruin a pair of pants’

“Suddenly I could not keep any food inside of me, from either end. I was losing weight fast. The weather was nice so my boyfriend and I went to a restaurant on the waterfront for dinner. Afterwards, he took the long, scenic way home. I was in intense pain and needed to get to a bathroom. We finally arrive and he insisted on walking me to the door, not realizing I was ready to sprint. The minute I shut the door behind me, I projectile vomited all over the entryway. I became a homebody. I was accused of things like, ‘You just want pity. You’re lazy.’”

‘At 12 years old, symptoms began to manifest. I had joint pain in my knees and mouth sores on my gums. Food gave me belly aches. Aside from winter colds, I never was sick.’

“My parents were concerned. I had lost weight and they could see changes in me. I was 13 now, in the hospital to stabilize my 80-pound body. My parents were frustrated I followed ‘the rules.’ ‘If I thought the day of my diagnosis was life-shattering, this day would change the whole trajectory of how I lived my life.”

‘She’s just a nervous child.’ The words still burn. I was 13, about to start high school. But I was different. My life was consumed with excruciating pain, diarrhea, and the toilet.’: Woman recounts her struggle with chronic illness

“I was standing in the kitchen alone. My phone rang. Assuming it was my husband, I answered. But it wasn’t my husband. All I could do was freeze. I was in shock. I hadn’t processed his words until I heard the ‘click.’ My body shook as I collapsed.”

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