cystic fibrosis advocate

‘I won’t let you die, Gunnar.’ I was heading towards end-stage illness, and an end to my fight.’: Son of quarterback, Boomer Esiason, advocates for others with cystic fibrosis, ‘I now live the miracle’

“I was 22 years old and feeling lonelier by the day, as my disease progressed faster than I could have imagined. One day in particular, I broke. I cried and cried. My mom saw it happening through the kitchen window and rushed to me in the driveway. She hugged me. I still think about that hug.”

‘What if Matthew doesn’t come home this time?’ I watch him struggle to breathe. I gasp for air, screaming as my mother holds my shaking body.’: Sister advocates for brother battling Cystic Fibrosis, ‘I will stand beside him in this fight, forever’

“My tears soak the sleeve of her sweatshirt. A sharp, strong pain runs through my chest. For the past 19 years, I have watched him swallow hundreds of thousands of pills. ‘What if Matthew gets sicker? How much time does he have?’ I finally decided I was tired of watching. Life gave me the greatest gift of all: a brother. I will stand hand-in-hand beside him in this fight.”

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