cystic fibrosis

‘I watched friends celebrate, while I was robbed of living life. The Internet is a blessing and a curse.’: Woman with Cystic Fibrosis gives tips on how to survive quarantine, ‘The limits are endless’

“One issue a lot of people face is in their time of solitude, they may be confronted with the fact that being by yourself is frightening. Your mind needs to become comfortable being alone. There will be no distraction. Your inner-monologue will inevitably be louder and more present than it ever has before.”

‘I won’t let you die, Gunnar.’ I was heading towards end-stage illness, and an end to my fight.’: Son of quarterback, Boomer Esiason, advocates for others with cystic fibrosis, ‘I now live the miracle’

“I was 22 years old and feeling lonelier by the day, as my disease progressed faster than I could have imagined. One day in particular, I broke. I cried and cried. My mom saw it happening through the kitchen window and rushed to me in the driveway. She hugged me. I still think about that hug.”

‘What if Matthew doesn’t come home this time?’ I watch him struggle to breathe. I gasp for air, screaming as my mother holds my shaking body.’: Sister advocates for brother battling Cystic Fibrosis, ‘I will stand beside him in this fight, forever’

“My tears soak the sleeve of her sweatshirt. A sharp, strong pain runs through my chest. For the past 19 years, I have watched him swallow hundreds of thousands of pills. ‘What if Matthew gets sicker? How much time does he have?’ I finally decided I was tired of watching. Life gave me the greatest gift of all: a brother. I will stand hand-in-hand beside him in this fight.”

‘It’s time to consider a lung transplant.’ I was terrified of dying before I’d started living.’: Young woman with Cystic Fibrosis fights ‘to live the fullest life I can, in the time I am given to live it’

“My parents comfort me by saying, ‘We will get through this.’ I needed oxygen pumped into my nostrils at all times to breathe. I was afraid I was dying. I’ve seen videos where they interview elderly people on their deathbeds who are asked what they regret in life. Most people regret not having lived passionately, fulfilled and happy. I believed I would be one of them if I didn’t make a change.”

‘Are you scared?’ she asked. Breathless, I whispered to my mom, ‘No. It’s time to rally.’ I was so close to death.’: Woman with cystic fibrosis ‘in awe’ after gifted new lungs on verge of death, ‘the kindness of a stranger saved my life!’

“The meds had stopped working – time was running out. The call came at just the right time. I remember doubling over, nauseous with the news I’d just received: ‘They have a match for lungs.’ I needed to be transported to Boston IMMEDIATELY. I crouched down by my hospital bed, struck with the magnitude of the situation. As prepared as I was, nothing could get me ready for this moment. I couldn’t catch my breath.”

For our best love stories, subscribe to our free email newsletter: