cystic fibrosis

‘I probably won’t outlive my sister or may not be able to see my children grow up. ‘Do you feel like a burden?’—Yes, I do’: Woman with Cystic Fibrosis details journey, ‘If you search for the silver living, you’ll always find it’

“I had no energy to move, let alone scream. My parents had nothing to be concerned about. All was a mystery. I hid behind the paper and the little book in my wardrobe no one knew existed. I was fine about everything and I sort of still am, but I don’t want to die yet.”

‘You won’t live past 15 years old.’ I never stopped believing in myself.’: Man with cystic fibrosis urges ‘don’t take your time on this earth for granted’

“I’ve sat in my bed asking, ‘Why God? Why can’t I breathe like everyone else?’ I’ve wondered if I should even try to build a career, friendships, or have love in my life because I’m going to die. Then I realized I will never be able to control the cards I’ve been dealt, but I can make the decision to never stop pursuing my dreams.”

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