Desmoids

‘Hey, you look swollen by your collarbone,’ my coworker stopped me. I groaned. I had a huge trip planned. The pain skyrocketed.’: Young woman lives with a chronic desmoid tumor, advocates so her ‘struggles can become guidance for someone else’

“My diagnosis began in a yoga studio. I noticed something was wrong when I couldn’t hold my balance easily. I developed a tight pinching and dull ache in my right shoulder. As I came out from anesthesia, my mom asked the doctor how it went. ‘Well, confusing,’ he replied. ‘The cause of your swelling and pain remains a mystery.’ I was stunned. I ended up in a surgeon’s office. ‘This is suspicious for a sarcoma.’ I had to interrupt. ‘I’m sorry, you said sarcoma? Do you mean I have cancer?’ I stammered in disbelief.”

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