diagnosed

‘My cheek was swollen. The doctor said, ‘I’ve never seen anything like this before. Your life expectancy is 6 years old.’: Woman gets Facial Infiltrating Lipomatosis diagnosis after 22-year battle

“We were told, ‘The swelling must be from the position she slept in. It’s nothing. It will go away soon.’ Weeks went by, but nothing changed. When puberty hit, my face was growing faster than I was. I had unexplainable headaches and nosebleeds. I was sleeping all day long. Everywhere I went, I got stares, whispers, and pointing fingers.”

‘I dropped to my knees. ‘Mom, I’m scared. I’m more than scared. Something terrible is going to happen to me.’: 21-year-old receives Type 1 Diabetes diagnosis, ‘I never knew how strong I’d come out of this’

“‘Miss Lehman, come on back.’ Finally. The moment I was waiting for. I had a whole list of symptoms written in my notes on my phone I read off to the nurses. They all looked at me with question marks on their faces. I could feel their energy. They thought I was just a young girl looking for attention.”

‘We can’t be friends anymore. You’ve become ‘That mom.’ That’s a tough pill to swallow.’: 34-year-old Mom diagnosed with autism ‘couldn’t be prouder’ of creating a world where ‘differences are celebrated’

“I received comments. ‘Are you sure you want to move forward with testing for that diagnosis? That means you and your child would have that label and diagnosis for the rest of your life!’ ‘I hope you don’t become ‘that mom.’ I’m the exact person I’m supposed to be. It’s ok that I struggle. I have a reason. And I couldn’t be prouder.”

‘School was torture. People made fun of me for ‘going to the bathroom too much.’ They thought I was anorexic. The doctor tried to dismiss me, telling me I had nothing but the stomach flu.’ Woman diagnosed with Intussusception, or severe intestinal problems, hopes to warn others

“I noticed my husband and mother exchange a very worried look. He told me this was likely the cause of all my problems since I was 4 years old. He also decided it was a good idea to tell me his last patient with this condition died.”

‘I was strapped down. ‘What if I feel him cut into me?’ My husband wiped away the tears that ran down my face.’: Mother says newborn’s delivery was the ‘most terrifying day of my life’ after HELLP syndrome diagnosis

“I must have looked terrified. The nurse said, ‘Don’t worry, this may be your first time, but it’s not our first time doing this.’ I strained to hear what the doctor was saying but couldn’t make it out. They’d occasionally laugh so I thought everything was going well. I felt a tug and I suddenly felt hollow. I remember asking, ‘Is she ok?’ She was only 2 pounds. The tiniest baby I had ever seen.”

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