diagnosis

‘Why don’t you lose weight?’ Me, unimpressed by an egotistical doctor: ‘Or you could just do your job.’: Woman with cervical cancer, PCOS beats infertility, ‘Always fight for yourself because you are worth it’

“I quickly became friends with Wanda, the lovely trans-vaginal ultrasound wand I had a hot date with every morning. ‘We found something on your cervix.’ My period stopped. I almost fainted on the subway on my way to work. I started gaining weight. I was told I likely would never naturally have children. Well, f**k.'”

‘They will remove your ovary through your vagina.’ My heart skipped a beat. ‘What? I’m on my period.’ The color never returned to his face.’: Woman cracks jokes before ovarian tumor surgery

“My mother-in-law asked me if I liked my doctor. ‘Well, I did before he stuck his finger in my butthole!’ I make jokes. Sometimes, really inappropriate ones. There is no right way or wrong way to deal with a situation like this. I was at a hospital that had already saved my life once.”

‘I sat up half awake. ‘Where is she?’ My husband woke up and looked confused. ‘Who?’ I said, ‘Shiloh. Where is Shiloh?!’: Baby with Cri Du Chat Syndrome survives after battling to stay alive 122 days in NICU, ‘I am so privileged to be her mom’

“He said in a gentle voice, ‘Can we talk to you both in the conference room?’ I knew we were going to receive life-changing news. ‘What more could go wrong?’ I wanted to not be me. Most moms dream of that euphoric moment when their precious baby is delivered into their arms. I did too. Unfortunately, I didn’t get the dream. I got the nightmare. The daughter I had dreamed up was gone.”

‘I’m positive you’re depressed, and that’s just from this one conversation.’ I froze inside.’: College student shocked by depression diagnosis, ‘It’s good to know people aren’t supposed to operate like this.’

“My family is very against medicine and doctors. My parents still don’t know I went to the doctor, or that I attend therapy regularly now. I don’t know what they would do, honestly. It’s ridiculous I need to hide going to the doctor, especially when it’s for my brain. My roommate was sharing how she couldn’t get out of bed. ‘It’s like someone placed you into a blank room, with no furniture or door or windows, and they expect you to thrive in it.’ It all clicked.”

‘How do you feel?’ I said, ‘Shocked.’ But the relief I felt was unreal. Tears streamed down my face.’: Woman diagnosed with autism at 30, ‘Autism is not something I have. It’s who I am.’

“As my phone began to ring, I noticed there was no caller ID. My heart skipped a beat, my throat tightened, and I froze. I knew this was it. Why were they calling now? This was not a good time. My report was ready. I felt the blood rush to my head. I was walking through a busy street. Tears streamed down my face. I had waited for forever. Why had we not seen it for so many years? I was 30 years old – so much of my life had been a lie.”

‘Patty, I can feel him, we have to go.’ There was no time to talk. ‘We love you, I’m so sorry.’ His last heartbeat was lying on my chest.’: Moms are given terminal diagnosis for baby boy, ‘We decided to celebrate. He was going to be loved.’

“I didn’t want to waste any moment I could have with him. It was hard not to notice his body changing, the color leaving, his skin hardening and getting so cold. I often wonder if I made the right decision keeping him with me for so long–but I know I did. Then the time came to hand him over. The nurse kept telling me to take as much time as I needed and I finally had to tell her, ‘If you keep telling me that, I will never leave.’ He gave me the biggest gift of all: he made me a mother.”

‘How could this happen?!’ I found myself unexpectedly pregnant at 40. Then the doctor said, ‘Syndrome.’ I held back tears.’: Mom births baby with down syndrome, ‘The minute I saw her sweet little head red hair, I fell in love’

“My phone rang while I was asleep. It was my doctor on the other end. ‘Your testing came back positive for Trisomy 21. I’m sorry.’ I started ugly crying. ‘How on Earth could this happen to me?!’ At 36 weeks pregnant, I noticed the baby hadn’t been moving. I did all the things I knew I needed to do. I ate, drank, lay down on my side. Still, I didn’t feel anything. I called the nurse. ‘Come in right away.’ I drove so fast. She hooked me up to monitors. I knew immediately my baby was in trouble. She was in distress.”

‘After my C-section, I heard, ‘Wow! He’s got a big birthmark on his face.’: Baby is born with Port-Wine Stain and Sturge-Weber Syndrome, ‘Never did I think I would have to consider what anti-seizure medication would best keep my child thriving.’

“A bright reddish-purple color covered more than half of my newborn son’s face. ‘Will this birthmark fade? Will it get worse? What will other people think? Can this lead to other health issues?’ Looking back now, those first months of Leo’s life, I was living in fear. I was consumed by anxiety, exhaustion, and confusion.”

‘Wait, you’re not kidding? 30 seconds ago, our life was perfect.’ I suddenly needed him in my arms. ‘This is not your fault. You are just a baby.’: Couple shocked by son’s Down syndrome diagnosis, ‘You’re not the baby I thought you were, but you’re still MY baby.’

“We were on cloud nine: our baby was here, he seemed to be in perfect health. I remember hugging him, saying, ‘Welcome to our family! I’m so happy to finally meet you!’ I commented on his nose and ears, but again, no red flags. Babies fresh from the womb all look like aliens anyway. His face suddenly looked completely different. I remember thinking, ‘This is not your fault.’ From the first moment I met him, he’s been whispering to me, ‘It’s okay, Mom. There’s nothing to be afraid of.'”

‘If we waited 2 more weeks, you would’ve been paralyzed from the neck down.’ I was in and out of consciousness. Death wasn’t the only thing on my mind.’: 15-year-old undergoes brain surgery after feeling dizzy, discovers rare chronic brain condition, Type 1 Chiari Malformation

“I knew something was very wrong. I was barely able to hold myself up. ‘Really Jen? Pull it together.’ No one had answers. All I heard was, ‘I think you’re depressed.’ I felt like someone had filled my head with cement. At this point, I had given up. I convinced myself I was out of my mind. I laid in that MRI machine and lost track of time. I felt like my life was over at 15. The tech pulled up the images on the computer. ‘You’re going to need a neurosurgeon.’”

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