“I’ve been a lazy, lucky lad from the fetal stage. Just kidding, lol. I consider my negative thoughts as a challenge to be handled, not a problem I can’t control.”
‘Rather than growing stronger, my skeletal muscles are wasting away. But I’m still up and kicking…well, not really.’: Man with Spinal Muscular Atrophy shares journey with humor
‘We don’t know what kind of life he will have. Only time will tell.’ All I could do was hold Elijah and cry.’: Mom shares emotional journey of facing unknowns of son’s rare CDG diagnosis
“‘Elijah doesn’t have any brain damage.’ I didn’t understand. Why did he bring us in to give us good news? ‘We have to take it one day at a time.’ I was devastated. Heartbroken.”
‘He said they were ‘non-symptomatic.’ I was sent off feeling relieved it wasn’t worse—if only I knew.’: Woman shares journey with Tarlov Cyst Disease to raise awareness
“When I woke up, I had lost sensation completely in my left leg, and I lost control of my bladder. The pain was excruciating.”
‘In ONE week, I’ve heard: ‘What’s wrong with her?’ ‘That’s so sad she has no arm.’ ‘She’s scary, I don’t like her.’: Special needs mom shares important reminder to teach inclusivity
“As you buy the backpack, and the crayons, and do all the school preparation things, please do the most important thing.”
It’s Time To Stop Reducing Stories Of Disability To Tragedy And Inspiration
“I am not a list of symptoms.”
Living with Autism, I Have a Fear of Being ‘Found Out’
“I deleted the hashtag, and it hasn’t gone back up since. On the same day, I posted about autistic pride. I was still afraid. Maybe if I pretend I don’t have autism, it won’t be an issue in my professional life.”
‘I came out to my dad, and he DIDN’T take it well. ‘I will TAKE AWAY your independence.’: Gay adoptee with cerebral palsy urges, ‘live your life on your own terms’
“I knew I was gay around 14 years old. However, because of homophobia and lack of tolerance for people with disabilities, I kept my mouth shut while SECRETLY falling in love many times.”
‘There’s one condition.’ I was shocked. I was used to getting overlooked.’: Woman with disability shares man’s surprising act of kindness, ‘It restored my faith in human kindness’
“He just shook his head. ‘Are you sure?’ I asked him. As I was thanking him, he told me to hang on and ran somewhere. This one experience was enough to make my whole week.”
‘When should we worry?’ The doctor said, ‘Now.’ The next thing I remember is crying in my husband’s arms.’: Mom of son with hearing loss, Usher Syndrome shares journey
“‘Do you need someone to drive you home?’ I couldn’t see through the tears. He couldn’t hear me tell him I love him, but he is capable of so much more than that.”
‘It felt like razor blades in my uterus. ‘I NEED pain medication!’ I thought I was going to throw up.’: Nonverbal woman with cerebral palsy shares journey with endometriosis
“‘This is not normal period pain.’ I stopped working, stopped going out, and stopped talking to anyone.”
