disease

‘My hands were shaking as I gripped my son’s tiny hand in the backseat. ‘Just hurry up and get to the hospital.’: Mom’s confusion after ‘idyllic’ newborn’s rare Congenital Adrenal Hyperplasia diagnosis

“Talk about nerves. ‘He’s a calm little guy!,’ my OBGYN assured us as they whisked him away to be washed and weighed. It was love at first sight. Then, just a few days before celebrating one month on this earth with our son, we underwent an intense baptism into a new, unimagined kind of parenthood. Our son was diagnosed with a rare genetic disorder.”

‘As my daughter was giggling, bursting with love in the next room, I was learning she wouldn’t be growing up at all.’ Mom’s 18-month-old daughter diagnosed with ‘Childhood Alzheimer’s’

“The phone rang. I grabbed a notepad, a pen, took a deep breath. How do you prepare yourself to answer a call with the results of whether your 18-month-old daughter is going to die? My mind shut off. All the air left the room. ‘Very serious, no cure yet, not sure, lots of research.'”

‘I love you. It’s not your fault,’ my mom said, crying. I screamed, trying to keep her awake until paramedics reached her.’: Daughter says losing mother to suicide was ‘the most painful experience I’ve ever gone through’

“A friend of my mom said, ‘Look, your mom came to make December beautiful again.’ It’s so true. My daughter is the light of my life. It’s emotional raising a daughter without my own mother alive, but I understand now I would not have the beautiful life I have today if she hadn’t passed.”

‘I couldn’t save him. Love couldn’t save him. For 4 hours they left his body there. They questioned me; they searched my house. I’ve stayed clean. He didn’t.’ Woman struggles to overcome husband’s death from heroin overdose

“At 5:00 a.m., I awoke to use the bathroom. I guess he couldn’t sleep? ‘Hun… Whatcha doing? You ok in there?’ Silence. There he was. The love of my life, my soulmate, the father of my children. He was gone. This disease took him from us.”

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