“Talk about nerves. ‘He’s a calm little guy!,’ my OBGYN assured us as they whisked him away to be washed and weighed. It was love at first sight. Then, just a few days before celebrating one month on this earth with our son, we underwent an intense baptism into a new, unimagined kind of parenthood. Our son was diagnosed with a rare genetic disorder.”
‘My hands were shaking as I gripped my son’s tiny hand in the backseat. ‘Just hurry up and get to the hospital.’: Mom’s confusion after ‘idyllic’ newborn’s rare Congenital Adrenal Hyperplasia diagnosis
‘As my daughter was giggling, bursting with love in the next room, I was learning she wouldn’t be growing up at all.’ Mom’s 18-month-old daughter diagnosed with ‘Childhood Alzheimer’s’
“The phone rang. I grabbed a notepad, a pen, took a deep breath. How do you prepare yourself to answer a call with the results of whether your 18-month-old daughter is going to die? My mind shut off. All the air left the room. ‘Very serious, no cure yet, not sure, lots of research.'”
‘I love you. It’s not your fault,’ my mom said, crying. I screamed, trying to keep her awake until paramedics reached her.’: Daughter says losing mother to suicide was ‘the most painful experience I’ve ever gone through’
“A friend of my mom said, ‘Look, your mom came to make December beautiful again.’ It’s so true. My daughter is the light of my life. It’s emotional raising a daughter without my own mother alive, but I understand now I would not have the beautiful life I have today if she hadn’t passed.”
‘I couldn’t save him. Love couldn’t save him. For 4 hours they left his body there. They questioned me; they searched my house. I’ve stayed clean. He didn’t.’ Woman struggles to overcome husband’s death from heroin overdose
“At 5:00 a.m., I awoke to use the bathroom. I guess he couldn’t sleep? ‘Hun… Whatcha doing? You ok in there?’ Silence. There he was. The love of my life, my soulmate, the father of my children. He was gone. This disease took him from us.”
‘My sweet baby, my firstborn son, is homeless, mentally ill and addicted to heroin.’
“It had been 4 months since we’d had any contact. I hear someone calling my name. It’s my son! It’s a miracle. I hugged my sickly thin boy and told him, ‘I love you.’ I didn’t want to let go. I offered to buy him a meal. Our interaction was less than 10 minutes long. I left him there.”
‘I had to tell them. ‘Your dad died by suicide.’ Words I knew would change their lives forever. Words no child should hear. I had to be honest with them. I was terrified.’
“My husband of 16 years. My best friend. The father to my 9 and 12-year-old beautiful boys. He left that morning for work. He never came home. I never saw his beautiful smile again. He just never came home.”
‘I blankly looked at the doctor. ‘What does this mean?’ He replied, ‘Hope you don’t go deaf.’ They gave me a discharge note. ‘I could drop dead at any time.’
“Would you ever think a blood clot could save your life? My phone dinged with a new email from the lab, I nervously signed in and opened the attachment. ‘No way!’ I shouted out loud, was I reading this right?”
‘With tears welling up in my eyes, I was only able to mutter one question: ‘But why does it hurt so much when I eat?’ Nobody answered me.’
“For what felt like an eternity, I laid quietly in my hospital bed, still surrounded by these strangers who were supposed to be some of the best doctors in the country, until a young-looking doctor standing across from the psychologist broke the silence, ‘Your head is messing with you, there is nothing physically wrong.'”
‘By age 9, I had thoughts about my own funeral. I wondered who would attend. Mom would find my Barbie dolls with notes like, ‘I want to die.’ Not at all normal for a child to be saying.’
“I remember telling my parents, ‘I love my life.’ That would soon change.‘ I lost the majority of my friends due to bullying. ‘I couldn’t even kill myself. I’m a failure.’”
‘I couldn’t sleep laying down anymore, I couldn’t laugh without gasping for air. I was dying. I was 22 and writing a will in case anything happened to me.’
“I was so busy moving forward I wasn’t even aware my mind was stuck. A few months afterward, the actual nightmares began. I would try to sleep and flashbacks and memories bombarded me. I cried every night for weeks. I knew I needed help.”
