dismissed by doctors

‘She must be dramatic. She isn’t actually sick.’ I must convince doctors I’m not an addict looking for pain meds. I beg to be taken seriously.’: Woman battling Celiac Disease explains ‘this isn’t just a food allergy’

“I was an all-star cheerleader. From the outside, I seemed perfectly healthy. After that first week in the hospital, I was discharged and told this was a ‘fluke thing’ and I needed to go on a ‘low-fat diet.’ Soon, the hair loss, stomach pains, bruises, and infections started. I was 90 pounds and miserable.”

‘Sedated and wearing diapers, I flew 3,000 miles during a global pandemic to have a life-saving surgery.’: After 23 years of not being taken seriously, woman finally diagnosed with 3 rare diseases

“The world was falling apart as a top neurosurgeon prepared to piece me back together. I watched the protests from a small TV in our hotel room and reflected on how I fought for 23 years to be heard by men and women in white coats who minimized my disabling symptoms and refused to acknowledge my struggle was real.”

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