“Oliver was on vacation with his dad when I got the call. ‘He stopped walking.’ Weeks pass. His lymph nodes are swollen. Something just wasn’t right. I remember telling my boss, ‘I have to leave!’ Before I could even get a response, I was gone. I’m worried the ER doctor missed something. The doctor is quiet. I can see in her eyes she is trying to stay calm for me, but something is there. I scream. Deep down, she knows something I don’t.”
‘I don’t want this life. I’m not cut out for this!’ I heard ‘I’m sorry’ on the other end. Adrenaline began, my face got hot. Then the tears started to roll.’: Boy with down syndrome diagnosed with acute lymphoblastic leukemia
‘There is a 90% chance your baby will be born with Down Syndrome.’: Couple prepares for rare Down syndrome Diagnosis, ‘we knew a diagnosis didn’t change our love for this little life inside of me.’
“I had no idea just a couple of days later, we would experience a loss and pain we were never prepared for. Our loss made us stronger. ’Your scans showed a high probability your baby will have Down Syndrome.’ How can I be a good mother when I hate being pregnant? I just didn’t want to be pregnant anymore.”
‘My baby was at ‘high risk’ of having Down syndrome. I mourned the baby I thought I was going to have, what she would look like, if I would be able to look after her.’: Couple ‘mentally prepares’ after Down syndrome diagnosis
“The sonographer saw a tiny little egg. It turned out that tiny egg was the one that was going to make me a mum. The very next day, I had a phone call, telling me my baby was at ‘high risk’ of having Down syndrome. Until she was born, it was easier to pretend everything was normal, so we did just that.”
‘Maryanne, will you marry me?’ I stood there, in awe of their love. Hate is just not in their DNA.’: Married couple now ‘longest living’ pair with Down Syndrome, ‘it’s nothing short of a fairy tale’
“Fate brought them together. They live in this bubble where they only have eyes for each other. They cannot bear to be apart. People doubted them, said it was ‘disgusting’ they were allowed to get married. 29 years later, disability or not, anything is possible with love. I think most of us could learn a thing or two from them.”
‘Looking at the photos, all I could think was, ‘She’s gorgeous!’ I saw her, not her disability. I sent them to my husband. I still remember his immediate words.’
“She was legally free. Our parents advised against it. ‘Your kid won’t be able to give back to you or support you when you’re old.’ ‘It’s too risky.’ I couldn’t understand why that mattered more than giving a child a home.”
‘I was told it was the ‘Cadillac of disabilities.’ His pediatrician even said, ‘Out of all the heartbreaking disabilities, his is also heartwarming.’ Down syndrome isn’t easy. We ARE special.’
“I’m here to call us out on all of our mild-mannered modesty. I’ve realized we ARE special, and we deserve that title. No, not everyone can do it. You are different. Your child is different. I am tired of wearing the martyr mask with an ‘aw shucks’ and a ‘not little ol me.’”
‘We were literally one in a million. Identical twins with Down syndrome happens once out of every million pregnancies! We had been chosen for this task.’
“The ultrasound technician laughed. ‘What is it?,’ we said. She looked at us. ‘There are two in there!’ I immediately cracked up laughing. Rayni looked like she had seen a ghost! ‘Are you serious?’”
‘Either pregnancy is harder with age or we’re having twins.’ Our son with down syndrome had just battled multiple heart failures and a stroke. ‘Actually, there’s 3.’ Um, excuse me! What the heck?!?!’ Mom delivers baby with Down Syndrome & heart defects, gets surprised with triplets 1 year later
“We went silent until I could finally ask him how sure he was. ‘Beyond 100% certain. Triplets.’ I was in tears instantly. Our life felt like a TV show playing out in real-time. How can we handle triplets plus making sure we meet our son’s medical needs? How can I continue to work full time? Do we need a bigger car? House? How is this going to work?! Excitement quickly followed. We accepted the challenge.”
‘I vividly remember looking into her eyes, sensing her vulnerability, promising to guard her. It was my job to be brave, but I doubted my ability. We heard ‘I’m so sorry,’ which prompted more tears.’
“When I found myself unexpectedly widowed at 39, I couldn’t have imagined what my life would look like 5 years later. We met on a dating website. Blending our families was a complicated task, accommodating the needs of 9 children between the two of us.”
‘She will probably never walk, but hey, these types of kids are always happy.’ Happy? I grieved for the daughter I thought I was going to bring home.’
“How was I going to be able to take care of my daughter? I wasn’t ‘special,’ I had no idea what to do! The doctor never even touched her. I realized my daughter was put in a box. A box of old school thinking and treatment.”
