down syndrome awareness

‘They can’t read or write. They don’t understand danger or time. But they understand pure love. And they’ve felt it 29 years.’: Married couple now ‘longest living’ pair with Down Syndrome, sister says it’s ‘nothing short of a fairy tale’

“Maryanne and Tommy live in this bubble of love and happiness. They walk hand in hand everywhere they go, totally unaware of anyone else.The love they share goes so deep they literally can’t bear to be apart. Tommy always calls Maryanne ‘my love’ and ‘my darling wife.’ He often sings to her his favorite song, ‘Love Me Tender’ by Elvis. When they got married 26 years ago, so many people doubted them, said it was disgusting they were allowed to get married. That it would never work. How wrong they were.”

‘I was told it was the ‘Cadillac of disabilities.’ His pediatrician even said, ‘Out of all the heartbreaking disabilities, his is also heartwarming.’ Down syndrome isn’t easy. We ARE special.’

“I’m here to call us out on all of our mild-mannered modesty. I’ve realized we ARE special, and we deserve that title. No, not everyone can do it. You are different. Your child is different. I am tired of wearing the martyr mask with an ‘aw shucks’ and a ‘not little ol me.’”

‘Either pregnancy is harder with age or we’re having twins.’ Our son with down syndrome had just battled multiple heart failures and a stroke. ‘Actually, there’s 3.’ Um, excuse me! What the heck?!?!’ Mom delivers baby with Down Syndrome & heart defects, gets surprised with triplets 1 year later

“We went silent until I could finally ask him how sure he was. ‘Beyond 100% certain. Triplets.’ I was in tears instantly. Our life felt like a TV show playing out in real-time. How can we handle triplets plus making sure we meet our son’s medical needs? How can I continue to work full time? Do we need a bigger car? House? How is this going to work?! Excitement quickly followed. We accepted the challenge.”

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