Down syndrome

‘This was an 18-month-old Caucasian little girl. ‘Do you want to move forward?’ I looked at him as he read it. The biggest smile came over his face as he wrote, ‘YES!’ 

“I told him this wasn’t a typical ‘let’s do it’ situation. They had just received information about the bio mom of the little girl, and she was pregnant. My jaw dropped. We had never considered two kids, let alone a newborn. I can’t say I was fully on board. The next month – I was pregnant.”

‘I was told it was the ‘Cadillac of disabilities.’ His pediatrician even said, ‘Out of all the heartbreaking disabilities, his is also heartwarming.’ Down syndrome isn’t easy. We ARE special.’

“I’m here to call us out on all of our mild-mannered modesty. I’ve realized we ARE special, and we deserve that title. No, not everyone can do it. You are different. Your child is different. I am tired of wearing the martyr mask with an ‘aw shucks’ and a ‘not little ol me.’”

‘The doctor called…the blood screen came back, it’s not good.’ My heavy 22-week pregnant body fell to the floor. It’s normally at this point people want to talk about their options.’

“At worst he’ll never be able to feed himself and at best he’ll mop the floors of a fast-food restaurant one day,’ he said with a wave of his hand, dismissing any room for hope.  Option 1 is you terminate the pregnancy. We don’t do that here, but we have a clinic we can send you to.”

‘I cried and wept uncontrollably because of how he was going to be made fun of, and thought of as less or not worthy. I never want my child to feel that hurt and pain. The sadness was so deep, it crushed my soul.’

“I know something about one of the children you don’t. You see two children holding hands and playing on a playground. Nothing special, just cute as usual. Children playing like they usually do, like they should be doing. But it is so much more than just that.”

‘My doctor held my hand and started, ‘Tami…’ In that moment, I knew. I couldn’t breathe because I knew. Or at least I thought I did. My heart exploded with relief!’

“We were walking out of the house when a feather floated right in front of us. As we sat enjoying our morning coffee, another tiny feather made an appearance. On the drive home, I kept thinking … two feathers … what does that mean? But I had a hunch. I went straight to the bathroom and found a pregnancy test.”

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