“We were on cloud nine: our baby was here, he seemed to be in perfect health. I remember hugging him, saying, ‘Welcome to our family! I’m so happy to finally meet you!’ I commented on his nose and ears, but again, no red flags. Babies fresh from the womb all look like aliens anyway. His face suddenly looked completely different. I remember thinking, ‘This is not your fault.’ From the first moment I met him, he’s been whispering to me, ‘It’s okay, Mom. There’s nothing to be afraid of.'”
‘Wait, you’re not kidding? 30 seconds ago, our life was perfect.’ I suddenly needed him in my arms. ‘This is not your fault. You are just a baby.’: Couple shocked by son’s Down syndrome diagnosis, ‘You’re not the baby I thought you were, but you’re still MY baby.’
‘My friend thinks you’re cute.’ A co-worker handed me a napkin with a phone number on it. ‘My family doesn’t know I’m gay.’: Woman loses partner to stage 4 lung cancer
“One night, my wife couldn’t lift her legs up the two steps on the front porch. She was carrying a bag with a t-shirt in it. The weight of it was enough to make her fall. I went out to find her hunched over, completely unable to move. She stayed there, crying and yelling, ‘Just leave me out here! Let me die!’ I knew something was wrong. In the freezing cold, I dragged her. ‘How do we tell the kids?’ The numbness was unbearable.”
‘Tell me if it’s a boy or girl! Why does a doctor have to call me?’ This news changed our entire life.’: Mom is pressured to terminate Down syndrome baby, realizes she made the right choice and feels ‘guilt for fearing him’
“‘So, just because he has Down syndrome, you offer termination?’ She became quiet. ‘I will have to talk to the doctor and have her call you.’ Ummm..say what?”
‘There is a 90% chance your baby will be born with Down Syndrome.’: Couple prepares for rare Down syndrome Diagnosis, ‘we knew a diagnosis didn’t change our love for this little life inside of me.’
“I had no idea just a couple of days later, we would experience a loss and pain we were never prepared for. Our loss made us stronger. ’Your scans showed a high probability your baby will have Down Syndrome.’ How can I be a good mother when I hate being pregnant? I just didn’t want to be pregnant anymore.”
‘My baby was at ‘high risk’ of having Down syndrome. I mourned the baby I thought I was going to have, what she would look like, if I would be able to look after her.’: Couple ‘mentally prepares’ after Down syndrome diagnosis
“The sonographer saw a tiny little egg. It turned out that tiny egg was the one that was going to make me a mum. The very next day, I had a phone call, telling me my baby was at ‘high risk’ of having Down syndrome. Until she was born, it was easier to pretend everything was normal, so we did just that.”
‘Mama, you’ve been chosen!’ I met my baby for the first time in someone else’s house. My heart raced.’: Young couple adopt baby with Down syndome, ‘He is the light of our lives!’
“I was 19 when I decided I was going to adopt a baby. My husband shrugged, smiled, and said, ‘Sounds good to me!’ We had 4 days to do…everything. We laid in bed, trying to fathom the idea this would be our last night alone. When the day came, the grief rocked me to the core. While we were gaining a son, his first family was losing a son.”
‘Yes, Meg. The baby is healthy, stop worrying.’ Coward. She knew. I saw it and felt sick. I didn’t want to hold her.’: Mom unknowingly births baby with Down syndrome, ‘I want to shout her worth to the world!’
“I grabbed a nurse’s arm as she walked by. ‘What’s wrong, is she okay?’ Stumbling over her words, she responded with, ‘Congratulations, she’s beautiful!’ Coward. She handed her to me before quickly walking out of the room, like she was some kind of damaged goods. Her tongue could barely fit in her mouth. I didn’t want to hold her, feed her, or even look at her. I was furious. All I could hear was that damn whispering.”
‘I placed him in a box, handing him off to a stranger. ‘I love you, Ren,’ I whispered to my son.’: Father tearfully recalls needing to be the ‘superhero’ after losing newborn, ‘I began to break’
“As my wife looked at his little face, she asked me to hand her a wet washcloth. Confused, I then watched as she began to softly dab his little dried up lips. She nurtured and cared for our little boy’s fragile body. I have so much gratitude to this woman. How strong she is. Not only did she say hello to our son for the first time, but soon, she was going to be forced to say goodbye. The thought haunted me.”
‘It’s been 5 years since I set foot in church. I have no intention of going back. It comes down to diapers.’: Special needs mom refuses to bring her kids where ‘they’re not fully embraced’
“Poop is where church ends. Poop is the special need that doesn’t get met by ministry. Believe me, I know that big kid pullups are not pretty. When the message finally got through to me, it broke me. My special needs boys were not wanted. They were only included if I was willing to meet all of the ‘unpleasant’ needs.”
‘To the dad at the bounce park, thank you for teaching your child to interact with someone ‘different.’: Mom to son with Down syndrome shares stranger’s act of kindness, inclusion that made her ‘heart swell’
“Your boy took off with the ball Cedar was playing with. You didn’t do what every other parent has done: give the ball back to the child who is different, apologize, and go. This felt genuine, special. You sat down next to Cedar and taught your son to roll the ball back and forth. You saw my little boy loved this so much. Yours was unsure, but you kept showing him how happy mine was. Cedar giggled and clapped. You did, too. I watched in amazement.”
