Down syndrome

‘My baby was at ‘high risk’ of having Down syndrome. I mourned the baby I thought I was going to have, what she would look like, if I would be able to look after her.’: Couple ‘mentally prepares’ after Down syndrome diagnosis

“The sonographer saw a tiny little egg. It turned out that tiny egg was the one that was going to make me a mum. The very next day, I had a phone call, telling me my baby was at ‘high risk’ of having Down syndrome. Until she was born, it was easier to pretend everything was normal, so we did just that.”

‘Mama, you’ve been chosen!’ I met my baby for the first time in someone else’s house. My heart raced.’: Young couple adopt baby with Down syndome, ‘He is the light of our lives!’

“I was 19 when I decided I was going to adopt a baby. My husband shrugged, smiled, and said, ‘Sounds good to me!’ We had 4 days to do…everything. We laid in bed, trying to fathom the idea this would be our last night alone. When the day came, the grief rocked me to the core. While we were gaining a son, his first family was losing a son.”

‘Yes, Meg. The baby is healthy, stop worrying.’ Coward. She knew. I saw it and felt sick. I didn’t want to hold her.’: Mom unknowingly births baby with Down syndrome, ‘I want to shout her worth to the world!’

“I grabbed a nurse’s arm as she walked by. ‘What’s wrong, is she okay?’ Stumbling over her words, she responded with, ‘Congratulations, she’s beautiful!’ Coward. She handed her to me before quickly walking out of the room, like she was some kind of damaged goods. Her tongue could barely fit in her mouth. I didn’t want to hold her, feed her, or even look at her. I was furious. All I could hear was that damn whispering.”

‘I placed him in a box, handing him off to a stranger. ‘I love you, Ren,’ I whispered to my son.’: Father tearfully recalls needing to be the ‘superhero’ after losing newborn, ‘I began to break’

“As my wife looked at his little face, she asked me to hand her a wet washcloth. Confused, I then watched as she began to softly dab his little dried up lips. She nurtured and cared for our little boy’s fragile body. I have so much gratitude to this woman. How strong she is. Not only did she say hello to our son for the first time, but soon, she was going to be forced to say goodbye. The thought haunted me.”

‘It’s been 5 years since I set foot in church. I have no intention of going back. It comes down to diapers.’: Special needs mom refuses to bring her kids where ‘they’re not fully embraced’

“Poop is where church ends. Poop is the special need that doesn’t get met by ministry. Believe me, I know that big kid pullups are not pretty. When the message finally got through to me, it broke me. My special needs boys were not wanted. They were only included if I was willing to meet all of the ‘unpleasant’ needs.”

‘To the dad at the bounce park, thank you for teaching your child to interact with someone ‘different.’: Mom to son with Down syndrome shares stranger’s act of kindness, inclusion that made her ‘heart swell’

“Your boy took off with the ball Cedar was playing with. You didn’t do what every other parent has done: give the ball back to the child who is different, apologize, and go. This felt genuine, special. You sat down next to Cedar and taught your son to roll the ball back and forth. You saw my little boy loved this so much. Yours was unsure, but you kept showing him how happy mine was. Cedar giggled and clapped. You did, too. I watched in amazement.”

‘I have to tell you something. I’m so sorry.’ I burst into tears. I hated others being sad about our baby.’: Parents shocked by Down syndrome diagnosis after signing paperwork to not do genetic testing, ‘We are keeping the baby’

“This embryo was a fighter from the beginning – it took. Then I got a life changing phone call. ‘Your baby has Down syndrome,’ the nurse informed me. WHAT? We signed paperwork saying we DIDN’T want any blood tests. The nurse, in an effort to ‘bond’ with me, told me how she got pregnant naturally with twins. One of the twins died, and the other twin had Down syndrome, so she terminated. ‘We would have taken that baby,’ my husband replied.”

‘He had curly blond hair, a perfect nose, pouty lips. They told me he was beautiful. I didn’t get to see.’: Mother survives ‘worst trauma’ after losing newborn son, insists daughter will grow up knowing big brother is ‘watching over her’

“I made the decision not to see and hold Jensen. It’s one of my biggest regrets I’ll ever have in my life. Honestly, I didn’t know how I could do it. I didn’t realize the permanence of him being really gone. Instead, I asked for a lock of his hair, and for them to take pictures of him. I wish I could go back to that moment, spend time kissing him. I wish I could’ve whispered in his ear, ‘I love you.’”

‘THERE’S A HEARTBEAT!’ she screamed. Next, we found ‘the bump.’ All I could feel was shock.’: Baby survives twice despite all odds, ‘he was worth every step of the way’

“My doctor saw blood and wouldn’t even attempt to check if my baby was alive. ‘WHAT?! You’re not doing an ultrasound? Blood work? Doppler?’ He shook his head no. ‘There is no use. You’re losing your baby.’ He dismissed us without emotion and left. The next day, we went to the OB to confirm the miscarriage. WHOMP WHOMP WHOMP. The nurse burst in, full-on sobbing. We were urged to terminate the pregnancy.”

‘Where did you get these?’ I knew. ‘Ren’s nursery.’ He didn’t realize how serious I was. ‘Put them back.’: Wife unexpectedly triggered by husband’s attempt at act of kindness, ‘It was all downhill from there’

“We ran out of toilet paper and Tommy was supposed to go to the store. Irritated, I asked him to get me something to use. Maybe a paper towel? He finally walks in holding a pack of wipes. They were a very specific kind, Huggies all-natural wipes. I started tearing up. ‘Put them back, please.’ He laughed and insisted I used them. He didn’t realize how serious I was until I started bawling. Something in his room was now out of place.”

 Share  Tweet