“Her skin was pulled so tightly that her eyelids had flipped inside out. We were informed her limbs could suddenly detach on their own. Every day, we faced a new challenge.”
“I looked at the ultrasound picture with his hand balled up in a fist. In that moment, I knew. I felt guilty that my choice to potentially pass this on could cause one of my children to have a less than perfect life.”
“He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’ Broken is the only way to describe the feeling as they placed her in my arms. They had never seen anything like this. She was fine; everything was perfect, and then it wasn’t — just like that.”
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