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‘We nicknamed her Chucky, from the horror films!’ Her hair got crazier, bigger. Wiry, matted, like it was crimped.’: Mom shocked by daughter’s ‘wool-like matted mess’ blonde hair, learns of rare ‘Uncombable Hair Syndrome’ diagnosis

“She was born with a head of thick, jet black, fluffy hair! But overnight, her hair came through poker straight, and pure white-blonde. She looked like a newborn, fluffy chick! Her hair looked full of static, wiry, like sheep’s wool. Slowly, it became worse. Hard to control. It got bigger, wilder as she grew, painful to brush. A lady mentioned it, but to be honest, I thought nothing of it. Then I realized it might be a problem.”

‘Her skin hardened within seconds. It began to split. My husband’s silence scared me.’: Mom says daughter born with Harlequin Ichthyosis is ‘beauty in the purest form’

“He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’ Broken is the only way to describe the feeling as they placed her in my arms. They had never seen anything like this. She was fine; everything was perfect, and then it wasn’t. But Anna was meant for me, and I for her, and together, we will show the world what true beauty is.”

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