“Have you ever had a medical professional look you in the eye and tell you it’s a MIRACLE your child is alive, and then say they have no medical reasoning as to how they ARE alive? Children born with no immune system unknowingly die from the common cold… Bella survived septic shock and 4 bowel surgeries.”
‘It was a war just to keep my newborn ALIVE.’: Medical mom praises daughter born with Severe Combined Immunodeficiency, dwarfism
‘Her legs look shorter than average.’ I brushed it off and laughed.’: Mom births daughter with dwarfism, ‘She’s the miracle I never knew I needed’
“My doctor came in, very somber. ’We’re concerned she has a growth issue.’ When she was welcomed into the world and laid on my chest, everything clicked and I knew.”
I Am More Than A Person With Dwarfism, I Am Kristen
“Society led me to believe I wasn’t enough. They’re wrong. I am more than a diagnosis, a statistic, a label, or a condition.”
‘I’ll see her in one month IF she makes it until then.’ He asked if we were related, multiple times. I was APPALLED.’: Mom births baby with dwarfism, ‘She’s doing AMAZING’
“I looked down at her hands and knew something was off. The mom in me knew. ‘So she’s going to be small? No big deal!’ We could tell there was something else he wasn’t telling us.”
‘What’s wrong with my baby?’ Her head was measuring large and her femurs were small. We were in denial this could happen to us.’: New mom births baby with dwarfism, ‘It DOESN’T define her’
“Everything had gone so wrong. ‘Did I eat something I shouldn’t have? Get exposed to something harmful?’ What was supposed to be the happiest part of our lives had turned into a nightmare.”
‘We got THE CALL. Without a second thought, I said, ‘Yes! A thousand times yes!’ I knew she was meant to be ours.’: Mom of 5 adopts baby with rare case of dwarfism, ‘She has no limits’
“Her legs seemed so weak. ‘They don’t make walkers her size.’ She pulled herself up. Within days, she was taking steps. She’s shown me to not put any limits on her.”
‘You were born for our entertainment.’ An avalanche of mean comments poured in. It was crushing.’: Woman with dwarfism ‘determined’ to spread awareness
“With a smile, my dad said, ‘You’re going to be tiny all your life.’ It didn’t usually bother me. I found acceptance and kindness at nearly every turn. And then I went viral.”
‘I’m 5’7″ and my husband is 6’3″. How could this be?’ We had no family history.’: Mom celebrates daughter with Dwarfism, ‘It’s part of what makes her perfect’
“The tech printed off the ultrasound photos and joked, ‘Your baby looks bald.’ After getting measurements of her arms and legs a few times, she left me alone. As the minutes ticked by, it started to click—something was wrong. The doctor came in, sat down, and passed me a box of tissues. My mind was spinning.”
‘I joined the basketball team in 5th grade. I just wanted to make ONE basket. I had to show I’m not a burden.’: Woman with Dwarfism spreads awareness, ‘I want to teach kindness’
“I never thought I’d get married because no one could like me because of my height. Now I have a husband who is 6’2.”
‘This is the first time I’ve seen something like this.’ We were starting to lose hope. What was going on with our baby?’: Couple advocates for son’s rare diagnosis, Cutis Laxa Type 3, ‘He’s a warrior’
“He was born full-term, weighing just two pounds. He gained five pounds. Then the seizures started. All we saw were tubes, PICC lines, and NG tubes. We weren’t getting any answers.”
