dystonia

‘My heart hammering, I answered the phone. ‘It’s very serious, there’s no cure yet.’ This disease takes everything.’: Mom raises awareness about Childhood Alzheimer’s after 18-month-old diagnosed

“‘Is this a good time to talk?’ With those words, I knew it was something awful. As my daughter was giggling, bursting with love in the next room, I was learning she wouldn’t be growing up at all. I didn’t know diseases like this even existed, not to mention strike children, our child.”

‘Momma, when are you gonna get better? I miss how you used to be.’ I could no longer lift her up. I didn’t have the guts to tell her there’s no cure.’

“I was walking down the sidewalk when I suddenly felt like my body was struck by lightning. My legs grew heavier with each step. All I could think was, ‘Something is very wrong.’ Nothing like this had ever happened before. The scariest part is fearing every day that I’ve passed it onto my daughter.”

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