early intervention

‘My family said, ‘I told you so.’ Why didn’t I notice it? I wanted to pretend it never happened.’: Mom first denies son’s autism diagnosis, now advocates for ‘acceptance, inclusion’

“We vacuum when he’s not home, use the blender in the garage and I can’t blow dry my hair unless he’s asleep. Once he sees the appliance, it’s an instant tantrum. Truth be told, I’m scared. Scared he’ll be bullied for being different. I’m so, so, terrified of that. ‘Is he going to live a ‘normal’ life? Will he get married, have kids?’ I still feel broken at times.”

‘That’s you!’ my wife said. I watched the TV screen carefully. Suddenly, my whole life made sense. I am autistic.’: Man discovers he’s autistic at age 32, now ‘happy, flourishing’

“Growing up, my mom always slapped me when I acted ‘weird,’ calling me ‘broken.’ I gave up on being loved and turned violent. I just felt angry all the time. I stopped caring about everything, especially myself, and contemplated suicide. Then, I met Sylvia. She understood me, she saw past the self loathing and the anger. She saw the real me, the loving me. She broke down the barrier I had put up to protect myself. I wanted to change for her. I wanted to deserve her.”

‘My daughter came home from preschool different. She was biting herself. She stopped speaking, sleeping, playing with toys. I could no longer write it off.’ Mom receives Rett Syndrome diagnosis, told it’s ‘one of the most severe cases’

“I get a call from the geneticist. The call drops 3 separate times. The most important call of our life and I miss it. I sit and wait. My phone rings again. He says, ‘Genetics just confirmed Evie has Rett Syndrome.’ He says, ‘There’s no cure. We can’t change it. You can’t do anything.’ My heart sank. This was serious.”

‘Maybe she hasn’t discovered her left arm yet?’ My baby was only using her right hand. Something was ‘wrong’ with my perfect, healthy girl.’: Daughter’s Hemorrhagic Stroke misdiagnosed for months, mom ‘beyond proud’ of her despite disabilities

“At her 6-month checkup, the pediatrician casually asked, ‘Does she switch toys back and forth between both hands?’ When I answered no, she said, ‘Oh no. This really isn’t normal.’ In the center of her brain was a burst vessel. This was both shocking and devastating. We were done waiting for her to ‘discover’ her arm. It wasn’t supposed to be like this. This was not in my plans, at all.”

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