echocardiogram

‘She had abnormal, starry blue eyes. I had a gut-wrenching feeling. We were told ‘not to worry.’ A checkup for a mild cough changed our lives.’: Mom births baby with Williams Syndrome, ‘Genetic disorder or not, we will love her more each day’

“Her low birth weight was dismissed. The doctor told us her heart murmur would ‘dissipate on its own’ and she would be just fine. Little did we know, these were the very first signs. As much as I wanted to convince myself nothing would be wrong, I had a gut-wrenching feeling. My mama heart just knew. They failed us.”

‘Is this the last time I can kiss him?’ I’d just learned my baby had Down syndrome. Now, he was blue, floppy, and not breathing.’: Mom says baby with Down syndrome, heart defects has taught her to ‘focus on the positive things in life’

“5 minutes into our drive, he began crying but stopped. I found it odd. It was a cry I hadn’t heard before. The light turned red, I pulled over. In seconds, I was down on my knees in the middle of the road, holding my floppy baby. ‘God, this can’t be it. Please don’t take my baby away!’ Giving mouth to mouth, I screamed his name for him to wake up. When he ambulance arrived, Noah was going in and out of consciousness.”

‘My husband entered the kitchen and announced he canceled the vasectomy. ‘I’m willing to try for one more.’ Two identical, squirmy bodies appeared on screen.’: Mom celebrates the birth of Down syndrome twins

“‘Look at our sweet girls,’ we cooed. Had the last ultrasound been this quiet? Two identical, squirmy bodies appeared on screen. Six specialists took turns presenting the same results. ‘Both your daughters will require open heart surgery.’ Information on testing and abortion: excessive. I would again be facing those heavy double doors.”

 Share  Tweet