ECMO

‘Her eyes looked up at me in panic. ‘Mommy, it’s blood.’ We were just in the ER and everything said she was fine. My stomach about hit the floor.’: Family says goodbye to their ‘forever Valentine’ after battle with flu

“Around 6 a.m., I heard her crying by my bed. ‘Mommy, my head hurts, my throat hurts, and my chest hurts really bad.’ This child never cried. She was breathing weird and for a bit, I thought she was being dramatic. Then in her weak, sweet, little voice, she asked, ‘Mommy, am I going to die?’ Something wasn’t sitting right. Every few seconds, she would say, ‘Mommy’ or ‘Hello,’ just so I knew she was doing okay.”

‘It’s okay, baby, you can go.’ With tear-filled eyes, we held our little boy’s body as his soul went peacefully to Heaven to join his big brother.’: Parents lose newborn to Alveolar Capillary Dysplasia

“My stomach dropped. Katy, still recovering from childbirth, fell to her knees in shock. ‘We’ve done everything we could possibly do.’ It was and is still excruciating. ‘One day, you will be able to ask God why this happened. But when you’re able to ask God why, it won’t matter because you’ll be with your baby.’”

‘If this ruptures, it will kill your wife and baby.’ My wife looked at me. ‘Save the baby.’ Our excitement turned to dread.’: Mom births baby with Complex Congenital Heart Disease, dad in awe of son’s ‘strength, resilience’

“Two months before our due date, I heard my wife scream, ‘Brian, come quick!’ I hurried upstairs to find her crouched on the bathroom floor, groaning in pain. After hours in the waiting room, I was called back to see her. Even under all the stress and exhaustion, she looked beautiful. ‘Can you handle a child like this? With heart defects?’ We both answered, ‘Yes.’ We never felt so scared in our lives.”

‘We begged her to let go. She kept fighting to stay with us. ‘We’ll be together soon. You need to go home,’ we said.’: Mom says daughter suffering from CHD ‘passed peacefully in my arms,’ is ‘finally at peace’

“We went to see Cora for the last time. I washed her hair and gently cleaned her body with a washcloth. I dressed her in our favorite headband and swaddled her tightly. Her sister gave Cora a kiss on her forehead. We told her to say goodbye. ‘Bye bye, Baby Cora.’ My mom took our eldest away so she could pass with my husband and I alone. She was so beautiful, looking at us with such deep love in her eyes.”

‘We are having a problem. Your baby is floppy and turning blue. She only has a 50% chance of surviving through the night but we’ll do everything we can.’ 

“I woke up suddenly to the sound of my husband’s footsteps coming up the stairs to give me his phone. ‘Something has happened to Drew. He’s had a seizure. We were on our way to the park.’ I remember thinking to myself, ‘I have experienced seizures in the past. He’ll be OK.’ Second phone call. Everything was a blur.”

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