Edward’s Syndrome

‘The doctor said, ‘If she’s born, she will look scary and be a burden.’ My husband questioned my choice. I decided to walk this path alone.’: Woman births baby with Edward’s Syndrome, ‘Every moment is the greatest gift’

“‘Hello?’ I answered the phone, recognizing the phone number of my OB office. I can’t tell you how the rest of the conversation went because I was absolutely in shock. I heard the words ‘incompatible with life.’ I was encouraged to terminate the pregnancy and was told if born, she would look scary and would be a burden on our family.”

‘Sweet dreams baby boy, mummy loves you.’ The tiniest coffin lowered into the ground. That’s when it really hits you.’: Woman loses son to Edward’s Syndrome, ‘We gave him the most love we possibly could’

“We sat down that night with our oldest two. We explained we were so truly lucky because instead of a baby to bring home, we were given the rarest of gifts: an angel baby. They sobbed, ‘But we want him to come home.’ We purchased his plot where he would soon be laid to rest. At 32 weeks, we met with the funeral director – all as he kicked playfully inside my belly.”

‘THERE’S A HEARTBEAT!’ she screamed. Next, we found ‘the bump.’ All I could feel was shock.’: Baby survives twice despite all odds, ‘he was worth every step of the way’

“My doctor saw blood and wouldn’t even attempt to check if my baby was alive. ‘WHAT?! You’re not doing an ultrasound? Blood work? Doppler?’ He shook his head no. ‘There is no use. You’re losing your baby.’ He dismissed us without emotion and left. The next day, we went to the OB to confirm the miscarriage. WHOMP WHOMP WHOMP. The nurse burst in, full-on sobbing. We were urged to terminate the pregnancy.”

‘And you continued the pregnancy anyways?,’ he said in a shocked and condescending tone, as he shook his head.’: Mom gives birth to child with Edward’s Syndrome

“My marriage was falling apart. He wanted to terminate the pregnancy for fear of inflicting unnecessary suffering on her. ‘What’s the point?,’ I overheard in the corner of the room. I was laboring alone. My husband and I’s marriage was in shambles at that point. My living unicorn was born with a full head of hair, and a palpable will to live. There wasn’t a dry eye in that delivery room.”

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