epilepsy

Special needs mom shares photos of her son with severe epilepsy, one smiling and carefree and one looking sad in the hospital

‘Your son has the worst epilepsy I’ve ever seen.’ It’s insane to have doctors ask how to treat your child.’: Mom shares son’s journey with Epilepsy through misdiagnoses, mistreatment to 3 years seizure free

“As time passed, I saw major changes in my once happy, carefree child. He was withdrawn and started to not like playing with his siblings or classmates. The doctor told me it was ‘just a side effect.’ My mom gut told me something wasn’t right.”

‘I heard an odd noise coming from my son. I looked over to see orange drool trickle from his mouth, his body rhythmically bouncing.’: Mom fights for answers to son’s undiagnosed seizures, ‘We will never stop trying’

“We had no cell service. There were no other vehicles on the road. We were alone, on a deserted highway, with our child who was quite likely dying, and we had no idea what to do. Nobody wakes up one day and thinks to themselves, ‘Today is the day my world will explode. Today everything is going to change and I’ll never get over it.’ But that’s exactly what happened.”

‘Here he comes,’ my OB said. The entire room fell into an ear-piercing silence. ‘Are you aware your son has abnormalities?’: Young mom celebrates ‘one in a million’ son born with limb differences 

“I couldn’t find my voice. My brain was still processing. She placed him on my chest. He was so warm, so beautiful. As I took him in, the film ‘Wonde’r I’d watched during pregnancy flashed. I’d turned to my best friend and said, ‘I could never be ashamed of my child if they were born special. That’s all the more reason to treasure them.’ Gratitude filled my heart. I was chosen for this.”

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