exhaustion

‘She’s alive. I should be grateful.’ But I wasn’t. I was angry. I did everything in my power to ‘fix’ her.’: Mom to daughter with Cerebral Palsy shares journey, ‘I focus on what she CAN do’

“I was wheeled next to her incubator and remember seeing her full head of hair. But I didn’t feel happy. I felt helpless. I couldn’t hold her, bond with her, or breastfeed her. I remember thinking, ‘What do I do?’ I went to Dr. Google for answers, and that just led me into a downward spiral of despair. How could I raise a child with special needs? I didn’t even know how to raise a typical child.”

‘You spent 30 years chasing something, only to get ahold of it and realize your dream is completely, utterly exhausting.’: Mom says family life isn’t for the ‘faint of heart,’ but tender moments make it all worth it

“Family life will nickel and dime you. It’ll squeeze you until you’ve got nothing left. Then it’ll squeeze you even harder. And right when you think you’re completely tapped out and you don’t have what it takes… You walk in on a moment like this.”

‘I love my family and friends. I genuinely do. But those dearest can wear me out.’: Woman explains the need for alone time is not a ‘personality flaw’

“My husband and I recently took our daughter on a 5-day road trip. We returned to host family, barbecue with friends. I loved every bit of it. I did. But then I crashed. I wanted nothing more than a nap in a dark, quiet room. I was 100%, without a doubt, suffering from a social hangover. I love people, but peopling requires lots of energy.”

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