facial abnormality

‘My cheek was swollen. The doctor said, ‘I’ve never seen anything like this before. Your life expectancy is 6 years old.’: Woman gets Facial Infiltrating Lipomatosis diagnosis after 22-year battle

“We were told, ‘The swelling must be from the position she slept in. It’s nothing. It will go away soon.’ Weeks went by, but nothing changed. When puberty hit, my face was growing faster than I was. I had unexplainable headaches and nosebleeds. I was sleeping all day long. Everywhere I went, I got stares, whispers, and pointing fingers.”

‘Are you sure it’s just a birthmark? Is it contagious? That’s gross.’ I was nicknamed ‘Two-Face.’: Man with Port-Wine Stain overcomes harsh bullying, urges ‘it’s helped me change lives’

“As a child, we moved a lot. There were always rude comments. ‘What is that red thing on your face?’ Because of my birthmark, I never had a girlfriend in high school, never went to the prom. When my dad asked me if I wanted to get treatments, I refused. ‘The only thing worse than a giant birthmark on my face would be a giant swollen, burnt and scabbed birthmark on my face.’ I had no idea it could get progressively worse.”

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