facial difference

‘My cheek was swollen. The doctor said, ‘I’ve never seen anything like this before. Your life expectancy is 6 years old.’: Woman gets Facial Infiltrating Lipomatosis diagnosis after 22-year battle

“We were told, ‘The swelling must be from the position she slept in. It’s nothing. It will go away soon.’ Weeks went by, but nothing changed. When puberty hit, my face was growing faster than I was. I had unexplainable headaches and nosebleeds. I was sleeping all day long. Everywhere I went, I got stares, whispers, and pointing fingers.”

‘She wasn’t getting enough air. She was almost gasping and was quite purple. It was pure torture.’: Woman gives birth to baby girl with Treacher Collins Syndrome, ‘Her disability won’t hold her down’

“I noticed her ear looked small, but I chalked it up to the typical squishiness of a newborn. ‘So what? What is the point of showing me her differences?’ She has underdeveloped ears, cheekbones, and jaw that make her appear a little different than most of us. I just stared at her in awe, with nothing but love and admiration.”

‘It was pizza day in school. ‘Your face looks like a pepperoni.’ My friend got up and slapped the guy.’: Woman born with port wine stain learns to embrace her beauty, ‘I needed to be myself’

“I was born with a big Port Wine Stain, covering half of my face. They would only laser a small part of my birthmark at a time because it was so painful. My mom recalls ‘the smell of burned skin getting in her nose.’ As I got older, I felt people staring more. Adults would stop in the middle of the sidewalk. ‘Wow.’ Kids would point. ‘Look at that.’ Imagine a little girl asking a grown woman, ‘Can I help you?’ That was me growing up.”

‘My fingertips gripped the vinyl. It felt like ‘hot rubber band snaps.’ My mom had to hold me down. For a child who doesn’t understand, it’s torture.’: Woman with port wine stain advocates for ‘torture’ pain control, ‘It felt like hot needles into my brain.’

“As we walked toward the doctor’s office, the fear made my body cold. I would feel my anxiety bubbling up, making it harder to breathe. I wanted to pull away from my mom. Stop getting closer. I became aware infants and children are still treated without any pain control. ‘They just swaddle them and do the treatment really fast,’ I was told. Babies? How could anyone do this? ‘It doesn’t really hurt.’ Reading this made me want to vomit. The memories of the pain and being held down is so visceral for me.”

‘Were you in a fire?’ ‘Did someone beat you?’ ‘No one will ever want to date you!’ It was cruel adults asking, not curious children.’: Woman born with Port Wine Stain views it as a ‘blessing’ to filter out ‘shallow, undeserving people’ from her life

“When I met my husband, he was unlike any other guy. He looked past my exterior and into my soul. He truly wanted to get to know me. He was attracted to my confidence despite of looking different. ‘I never see your birthmark,’ he always says. He never made me feel insecure like so many guys in the past. So many broke my heart, used me, kept me a secret, disrespected and took advantage of me. He never made me feel like I had to change who I was.”

‘What’s wrong with her? Can it be fixed?!’ I had wide-set eyes, webbed fingers. People can’t help but stare.’: Woman meets child with similar Craniofacial differences, ‘I hit the jackpot and found belonging’

“I’m a closet Web MD researcher. I typed in all the things I was born with and a term popped up. Low and behold, there were kids all around the world that looked like me! I’ve always made up wild exaggerations as to why I was born this way. Now, I need no answer. For the first time in my life, I can say, ‘Me too.'”

‘Excuse me, my child has a question about your face.’ Others pulled their kids away like I shouldn’t be looked at.’: Woman with Craniofacial differences reminds us to use ‘kindness’ to approach uniqueness

“In middle school, kids started to stare and ask, ‘Why does your face look smooshed? What’s wrong with your nose?’ My mom would tell me how pretty I was and I’d always say, ‘You’re my mom, you have to say that.’ I’d spend so much time buying cuter clothes, different makeup, more jewelry to overshadow my face. But when I stripped it all down, my confidence was gone.”

‘I fell to my knees crying. ‘Mrs. Marlowe, when do you want her?’ I was determined to give little Teeba a home.’: Mom adopts little girl in wake of bombing, ‘I just couldn’t take no for an answer’

“Her skin was scarred from the bombing. She had virtually no hair left. But all I could see were those big, brown eyes with extra-long eyelashes. As we waited at the gate and the plane arrived, the last passenger walked out and there was no Teeba. My heart sunk. There was no way I wasn’t going to answer this calling.”

‘The bride who refused to cover her birthmark.’ People wonder why I’m not ashamed.’: Woman with nevus birthmark celebrates her ‘distinctive look,’ reminds us to ‘love ourselves’

“At church, I made eye contact with a lady. She gestured for me to remove my birthmark from my face. I ignored her, but every time I gazed her direction, she’d make the same gesture. At the end of the service, the pastor asked if anyone had final remarks. She stood up. ‘I want the young lady to remove what’s was on her face.’ I was 9 years old.”

 Share  Tweet