febrile seizure

Special needs mom shares photos of her son with severe epilepsy, one smiling and carefree and one looking sad in the hospital

‘Your son has the worst epilepsy I’ve ever seen.’ It’s insane to have doctors ask how to treat your child.’: Mom shares son’s journey with Epilepsy through misdiagnoses, mistreatment to 3 years seizure free

“As time passed, I saw major changes in my once happy, carefree child. He was withdrawn and started to not like playing with his siblings or classmates. The doctor told me it was ‘just a side effect.’ My mom gut told me something wasn’t right.”

‘I heard an odd noise coming from my son. I looked over to see orange drool trickle from his mouth, his body rhythmically bouncing.’: Mom fights for answers to son’s undiagnosed seizures, ‘We will never stop trying’

“We had no cell service. There were no other vehicles on the road. We were alone, on a deserted highway, with our child who was quite likely dying, and we had no idea what to do. Nobody wakes up one day and thinks to themselves, ‘Today is the day my world will explode. Today everything is going to change and I’ll never get over it.’ But that’s exactly what happened.”

‘I got in the shower. ‘Dana, are you alright?’ My boyfriend heard a loud crash. He rolled me on my side, stuck his fingers in my mouth.’: Woman with epilepsy explains how she has ‘cheated death’ countless times

“My boyfriend heard a loud crash. ‘Dana, are you alright?!’ No response. He rushed in thinking our shower curtain simply fell. It did. But me with it. I began to choke as he rolled me on my side and stuck his fingers in my mouth. My guard was down. I woke up in the back of an ambulance.”

‘He was perfectly healthy with no fever. I called 911 while mom made sure Sawyer didn’t harm himself. By the time the paramedics arrived the seizure had stopped.’: Mom details son’s experience through seizures, EEG and the Emergency Room 

“After being in our room at the ER for less than 10 minutes Sawyer had another seizure followed by another one less than an hour later. At this point, our new doctor was taking it very seriously. Sawyer got a CT scan and was admitted to the hospital. He had a few more seizures before we saw the neurologist on call.”

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