feeding tube

‘The neurologist called. ‘I’m 90% sure your son has Congenital Disorder of Glycosylation. Do not google it.’: Special needs mom urges, ‘Life can be beautiful, even when it doesn’t go as planned’

“Christopher is 7 years old and cannot sit on his own without falling over. He can’t walk and uses a wheelchair. He hasn’t had food orally for over 5 years, and is fed with a GJ tube. He has never told me he loves me, or said a single word. And I have learned that even without words, his story is going to be a beautiful one.”

‘I kept asking, ‘Is my baby okay? Why has no one updated me yet?’ I don’t want to touch him. I don’t want to even look at him.’: Baby born with Cornelia de Lange Syndrome, ‘They avoid us like the plague’

“‘Termination should be strongly considered,’ was rubbed into my face. For 2 weeks after his birth, no one but myself and my husband were allowed to see Preston due to isolation. Our 2-year-old daughter wasn’t allowed to meet her new little brother. I didn’t ever go a day without having hope.”

‘She wasn’t getting enough air. She was almost gasping and was quite purple. It was pure torture.’: Woman gives birth to baby girl with Treacher Collins Syndrome, ‘Her disability won’t hold her down’

“I noticed her ear looked small, but I chalked it up to the typical squishiness of a newborn. ‘So what? What is the point of showing me her differences?’ She has underdeveloped ears, cheekbones, and jaw that make her appear a little different than most of us. I just stared at her in awe, with nothing but love and admiration.”

‘Out of left field, the man asked, ‘Ma’am, will she ever be normal?’ Fighting back tears, my 5-year-old climbed on A.J.’s wheelchair and look him straight in the eye.’: Woman adopts child with cerebral palsy, ‘Life has never felt more complete’

“I got the phone call that would change our lives forever. ‘Her mother was found deceased this morning.’ We asked, ‘How would y’all feel if A.J. stayed with us forever?’ The two girls’ bond is like I have never seen. She doesn’t see A.J as ‘different,’ she just sees her baby sister. I don’t think any of us could imagine life without her.”

For our best love stories, subscribe to our free email newsletter: