financial stress

‘She’s alive. I should be grateful.’ But I wasn’t. I was angry. I did everything in my power to ‘fix’ her.’: Mom to daughter with Cerebral Palsy shares journey, ‘I focus on what she CAN do’

“I was wheeled next to her incubator and remember seeing her full head of hair. But I didn’t feel happy. I felt helpless. I couldn’t hold her, bond with her, or breastfeed her. I remember thinking, ‘What do I do?’ I went to Dr. Google for answers, and that just led me into a downward spiral of despair. How could I raise a child with special needs? I didn’t even know how to raise a typical child.”

‘That’s crazy!’ I filed it away under the ‘that would never happen’ section of my brain. Then came ‘the call.’ I broke down in fear.’: Baby diagnosed with Biliary Atresia, undergoes liver transplant, ‘She’s full of life’

“I was sleeping in hospital chairs at 20-something-weeks pregnant, walking a bridge back and forth between the children’s hospital and the cancer center, visiting my mom who was undergoing treatment for her second round of cancer. All while my husband was laid-off for needing time to help watch our other children.”

 Share  Tweet