Fragile-X Syndrome

‘They’re gone, we lost them.’ A substitute teacher touched my belly. There was no belly. I had to mutter these words.’: Couple struggling with Fragile X Syndrome, infertility, finally pregnant with rainbow baby, ‘People tell me how strong I am. I wasn’t given another choice.’

“We were having identical twin girls. My husband and I were overjoyed. But our twins did not develop their brains. We lost both our little girls. Because I am a teacher, I had to write to all of my students’ parents about what happened, asking them to explain it to their 5-year-old children. There was no belly. I had to mutter the words, ‘They’re gone, we lost them.’ It leaves behind scars, fears, and triggers.”

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