“I wrote, ‘My mom is dying in hospice care and I feel guilty every day I’m not there sitting by her side.’ I awoke to something so unexpected. ‘Alex! Oh my god, Alex!’”
‘I was 13 hours away with $1.32 in my account. Tears in my eyes, I gently opened the door. There was a look of shock on her face. ‘How did you get here?!’
‘Her oxygen levels dropped. She had blisters and dark swirls all over her body. Ever seen a movie where someone gets devastating news and collapses down a wall? That was me.’
“After about 8 hours of not being able to get our 5-day old daughter to eat, we took her to the emergency room. ‘She’s fine,’ they told me again. I kissed my 2-year-old. ‘I’ll be back as soon as I can. I’m just going to go make sure your sister is okay.’”
‘Take your shirt off!’ Instead of helping her, they pointed or laughed. She said, ‘I don’t want him to feel how he made me feel.’
“Her spine was collapsing. Her ‘best friend’ no longer wanted to talk to her. She lost the ability to sit up, walk, or do anything herself.”
‘And there’s the other one!’ she said. Another blob appeared. My husband and I were shocked. I broke out in a huge smile. ‘Oh my gosh, oh my gosh!’
“I’d never seen my husband speechless until that moment. I remember being terrified, but I assumed everything would end up okay. These sorts of terrible things happened to ‘other people,’ and surely not me.”
‘In the coldest bedside manner, he said, ‘It is extremely rare and there is no cure. IF she lives, she will stop mentally developing at 2 months old.’ I just stared at him, my body slowly over heating.’
“I could feel the nausea setting in. I could feel the walls closing in on me. I could feel Bobby fuming. I told him get me out of there. I was BORN to be her mom. She is here to prove everyone wrong.”
‘Why God? She’s innocent. She’s only 6 months old!’ Thoughts of guilt flooded my mind. How could I possibly want to bring another child into this world so soon after losing my daughter?
“I wish I never had gone home. Around 2 a.m. we received a call from the hospital. I knew something was terribly wrong.”
