“The doctor abruptly gave Max a quick examination. WHAT?? Our world flipped off its axle. I cried incessantly. The overwhelming feeling of grief felt too much to handle. I said to my husband, ‘If anyone can cure this kid, it’s us! We were chosen to be his parents for a reason.'”
‘I was giving my son a bath when I noticed 3 little pubic hairs. I got an ominous call from our pediatrician at 6:30 in the evening.’: Mom works to cure son’s Duchenne Muscular Dystrophy, ‘Where there is life, there is hope’
‘Parts of our baby’s brain were missing. I spent all my time crying. My husband spent his time avoiding it all. ‘Please don’t plan a baby shower.’ I didn’t want to return things if my baby died.’: Woman’s baby diagnosed with HPE, claims there’s ‘hope after prenatal diagnosis’
“Everyday interactions like strangers asking about my baby in the grocery store felt like ripping open a wound. I tried to prepare my 3-year-old for the chance that his baby sister may not come home from the hospital. As my due date approached, we considered planning for a funeral. But how do you truly prepare for the death of a child? I felt so bitter.”
‘He wanted me to get a second opinion. ‘Things like this don’t happen to people your age.’ All the findings from the ultrasound lined up.’: Mom spends 19 hours with son with Trisomy 13, ‘We can learn to celebrate every moment’
“When our oldest son saw him, fear set in. He was scared. He loved him dearly, but seeing my son afraid of his baby brother is something I’ll never forget.”
