“Everyday interactions like strangers asking about my baby in the grocery store felt like ripping open a wound. I tried to prepare my 3-year-old for the chance that his baby sister may not come home from the hospital. As my due date approached, we considered planning for a funeral. But how do you truly prepare for the death of a child? I felt so bitter.”
‘Parts of our baby’s brain were missing. I spent all my time crying. My husband spent his time avoiding it all. ‘Please don’t plan a baby shower.’ I didn’t want to return things if my baby died.’ Woman’s baby diagnosed with HPE, claims there’s ‘hope after prenatal diagnosis’
‘He wanted me to get a second opinion. ‘Is it a boy or a girl?,’ I frantically asked. ‘Are you sure you want to know?’ ‘Yes, please tell me.’ ‘A boy, it’s a boy.’ Things like this don’t happen to people my age.’
“When our oldest son saw him, fear set in. He was scared. He loved him dearly, but seeing my son afraid of his baby brother is something I’ll never forget.”
