genetic defect

‘We need to talk. Your baby’s head is BIG. His fingers look like a starfish.’ WHAT? He passed the Kleenex. I lost it.’: Mom births son with Dwarfism, ‘He was made special on purpose’

“I thought he was joking. ‘Ohhhhh, I was hoping to walk in and see that you two were just very short. Have you ever seen the little people shows on TV?’ What the heck? He was convinced our son was a dwarf. He double checked measurements. He was actually serious! ‘What will our friends think?!’ I couldn’t breathe.”

‘Momma, when are you gonna get better? I miss how you used to be.’ I could no longer lift her up. I didn’t have the guts to tell her there’s no cure.’

“I was walking down the sidewalk when I suddenly felt like my body was struck by lightning. My legs grew heavier with each step. All I could think was, ‘Something is very wrong.’ Nothing like this had ever happened before. The scariest part is fearing every day that I’ve passed it onto my daughter.”

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