hair

‘She seemed off. Not eating, stomach aches, lying around. The pediatrician basically laughed at Tim, confused why they were there. How did all the doctors miss it?’

“It started with a fever, and then her limp would get bad and she would be up all-night crying and screaming in pain. Eventually she slept in our bed because I couldn’t keep going back and forth to her room. What about our other daughter, Lily?! We were going to have a new baby almost any time! I immediately left the room and sobbed.”

‘He’s here, he’s breathing, and he has a TON of hair!’ The joy only lasted for a moment. Our son was ready to shake things up at the hospital.’: Mother learns of son’s rare Cornelia de Lange syndrome diagnosis

“There was silence. She smiled, turned off the screen, and said she would be right back. I looked at my fiancé with tears in my eyes. ‘I knew it.’ They told us our baby would have some sort of syndrome, and we had ‘no choice’ but to continue with the pregnancy. I remember feeling angry at that, ‘no choice but to continue.’ As if they had already deemed his life to be unfit to continue.”

‘Mommy, I’m ugly.’ She was staring at a photo of herself, sobbing. She tugged at her hair, begging it to grow.’: Mom says ‘genetics’ caused daughter’s lack of hair, paints it pink to prove she’s a ‘beautiful princess’

“My daughter who was just skipping about was now shouting, ‘Please take me home!’ I know her struggle because I, too, had no hair. I wanted to make her feel beautiful, so I bought a pretty hair dye. She anxiously giggled as we waited for the big reveal. When I finished drying it, she gave me a look that said, ‘Thank you, Mama.’ I’ve never seen her smile so big.”

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