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‘We nicknamed her Chucky, from the horror films!’ Her hair got crazier, bigger. Wiry, matted, like it was crimped.’: Mom shocked by daughter’s ‘wool-like matted mess’ blonde hair, learns of rare ‘Uncombable Hair Syndrome’ diagnosis

“She was born with a head of thick, jet black, fluffy hair! But overnight, her hair came through poker straight, and pure white-blonde. She looked like a newborn, fluffy chick! Her hair looked full of static, wiry, like sheep’s wool. Slowly, it became worse. Hard to control. It got bigger, wilder as she grew, painful to brush. A lady mentioned it, but to be honest, I thought nothing of it. Then I realized it might be a problem.”

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