heart condition

‘I cried all day, waiting for a call from our doctor. She needed to see us right away.’: Family discover 2 other children have complex heart issues after newborn’s complications

“I was secretly hoping for a girl, but the sonographer told us it was a boy. I looked at Austin, smiled, and said, ‘At least we make healthy boys.’ The sonographer’s reaction was a little startling. She said, ‘Well, wait…’ She couldn’t get a good view of his heart, but she didn’t know why.”

‘This was the last photo I took of Finn in a school. It’s all gone. His body language is an obvious expression that he did NOT want to be pulled away.’: Mom of son with heart disease says ‘you can’t have a lifestyle without LIFE’

“His teacher means the WORLD to him, the world. We had big plans for May 28th. Finn’s graduation from preschool and an adorable spring program that was planned. It’s all gone. He will never get to complete preschool. We had our kids at this school for 6 whole years and with one announcement, gone.”

‘I didn’t need his permission. I closed my eyes, clicked a button, and finally put an end to my pretending.’: It’s been one year since I stopped faking it on social media

“I posted our most recent family photos, and the comments poured in about how ‘perfect’ my family was. I knew things needed to change. I didn’t want people to just like my photos, I wanted them to like me, all of me—even the painful, grieving parts. I am a child who was abused by her father at 3 years old. A teenager who was the victim of statutory rape. I found my husband unresponsive on the floor with a failing heart.”

‘Your baby’s heart is on the wrong side.’ I cried. ‘PLEASE be with him, I don’t want him to be alone.’: Mom devastated to learn of newborn’s heart defect, wishes she could ‘take his place’

“The sonographer went very quiet and kept putting her body in strange positions. She said the baby was laying awkwardly. We had to sign papers prior to his surgery warning us of the risks… death being one of them. We were so helpless. He was so tiny. It didn’t seem fair. I was so excited to see my little boy and give him a big kiss.”

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