heart defects

‘You’re lucky he didn’t die in his sleep. He is 1 in 6 billion and will be bedridden for life.’ I clenched my husband’s hand in disbelief, tears welling in my eyes.’: Mom praises medically complex son, ‘He is our little heart warrior’

“He was lifeless and pale. The clock was ticking. All we could do was pray and hold his little hand. Sitting beside his hospital bed, 3 genetic doctors in white coats rushed in. ‘Can we go to a private room to talk?’ I walked down the hallway in a fog. ‘We were wrong. It’s severe. He will never live independently on his own.’ Soon after, he had a stroke and began seizing up. This was the worst-case scenario. It was really happening.”

‘THERE’S A HEARTBEAT!’ she screamed. Next, we found ‘the bump.’ All I could feel was shock.’: Baby survives twice despite all odds, ‘he was worth every step of the way’

“My doctor saw blood and wouldn’t even attempt to check if my baby was alive. ‘WHAT?! You’re not doing an ultrasound? Blood work? Doppler?’ He shook his head no. ‘There is no use. You’re losing your baby.’ He dismissed us without emotion and left. The next day, we went to the OB to confirm the miscarriage. WHOMP WHOMP WHOMP. The nurse burst in, full-on sobbing. We were urged to terminate the pregnancy.”

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