heart disease

‘Are you sure he isn’t cold?’ His swim instructor constantly asks, concerned over his very blue lips.’: Mom emotionally recalls son’s severe heart disease operation, ‘I know every angel was watching over him’

“I had planned my son’s funeral. I had cried brutally painful tears which turned to moans because I had none left. That day, my life changed. I thought I had witnessed miracles in the past, but those were just test runs and rehearsals for this moment. I know when the anesthesiologist said, ‘We’ll treat him as our own,’ she meant it.”

‘Your baby’s heart is on the wrong side.’ I cried. ‘PLEASE be with him, I don’t want him to be alone.’: Mom devastated to learn of newborn’s heart defect, wishes she could ‘take his place’

“The sonographer went very quiet and kept putting her body in strange positions. She said the baby was laying awkwardly. We had to sign papers prior to his surgery warning us of the risks… death being one of them. We were so helpless. He was so tiny. It didn’t seem fair. I was so excited to see my little boy and give him a big kiss.”

‘Holly are you sitting down?’ I cheated death. Cardiac arrest caused 6 of my family members to die.’: Woman is 9th person in family to inherit heart disease, ‘I believe my own life was spared to save others’

“‘I’m glad you’re still with us,’ my surgeon whispered. Tears of gratitude spilled from my eyes. I felt a kiss on my forehead. With less than 90 seconds to spare, my surgeon had saved my life. The defibrillator implanted in my chest was 10 years old, with fractured wires, on the manufacturer’s recall list, and requiring immediate removal. In the middle of this dangerous procedure, a vein suddenly ruptured. My blood pressure plummeted.”

‘What does a baby’s heart look like at 18 weeks?’ I knew something was wrong. But Tad’s father continued to say, ‘Don’t worry until we have to.’ So I tried my best not to.’

“‘He is sitting Buddha style facing away from me, so I cannot not get a good look.’ I remember watching him confirm the gender, check fingers and toes, but kept going back. He told us ‘not to worry.’ I left that appointment wanting to share the great news of, ‘we’re having a baby boy,’ but it was a double-edged sword.”

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