heart surgery

‘Is it the right decision?’ They came to take her. I stood, paralyzed, and watched as she disappeared. There was debilitating fear.’: Girl with Down syndrome survives new heart surgery, ‘She’s one of the first to have it’

“I kept taking her picture, scared it could be the last one. I counted every eyelash, perfectly placed on her eyes. She would be the first on the West Coast to have this surgery. I didn’t want to let her go because then the decision would be final.”

‘Our baby is going to die.’ Harper spiked a 106-degree fever. ‘She has a 1% chance of making it to her first birthday.’: Mom births miracle baby with Trisomy 18

“The doctor said, ‘These kind of babies do not make it full term and if the baby is born alive, they only live a few days…a week at most.’ Weeks later we were told, ‘We can’t find any markers.’ They couldn’t see any holes in her heart and all of her other signs had disappeared. She looked perfect. My husband and I were lost and confused.”

‘When he is older, how do I explain this?’ We handed over a tiny 3-month-old for his first open-heart surgery.’: Mom of heart warrior thanks those who helped, ‘He lived, and so much of that is due to all of you’

“He shows his scar to everyone. Sometimes he will say, ‘I saved Mommy from a great white shark, look, guys!’ Other times, he just tells people, ‘I had heart surgery!’ The first question immediately is always, ‘Did it hurt, Finn!?’ He just sweetly replies no and then wants to play. He lived. We all did.”

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