hydrocephalus

‘Staring into my Poppy’s eyes, I asked him to pick a baby for us when he got to heaven. I kissed his cheek and whispered in his ear, ‘Make it a girl.’: Mom births baby with Spina Bifida, ‘She does things in her own way’

“One morning, a woman came in swiftly wearing a leopard blouse and clicking her heels. She walked right over to me. ‘Sorry for the bad news,’ she said and walked away. What bad news?! I wasn’t informed of any bad news! I broke out into tears as she exited. During the gender reveal, I was hiding this secret while watching my mom cut into our cake. I was giving them a broken baby.”

‘My husband was fuming. I was BORN to be her mom. She is here to prove everyone wrong.’: Daughter diagnosed with ‘extremely rare condition’ Lissencephaly, family ‘cheering for her every step of the way’

“In the coldest bedside manner alive, the doctor said, ‘There is no cure. If she lives, she’ll stop mentally developing at 2 months old. Here’s some paperwork. Any questions?’ I stared at him, my body slowly over heating. I told my husband to get me out of there. I looked up at the sky and thought, ‘Well, here we go.’”

‘Why isn’t she letting me see my baby? I want my baby!’ Our nurse was stalling, looking for something. But what? I felt sick.’: Mom’s newborn diagnosed with Pfeiffer Syndrome, wouldn’t ‘change her uniqueness for the world’

“As far as we were concerned, we were going to give perfect to a perfect, healthy little girl. Instead, she was born with unusually low ears, a cone-shaped head, and a squeezed brain. NO ONE at our hospital had seen anything like it. I was in shock and kept thinking, ‘Why her? How am I supposed to take care of her?!’ I didn’t feel prepared or strong enough for this. I was grieving the loss of a child, the one I thought I was having.”

For our best love stories, subscribe to our free email newsletter: