Hydrops Fetalis

‘I kept asking, ‘Is my baby okay? Why has no one updated me yet?’ I don’t want to touch him. I don’t want to even look at him.’: Baby born with Cornelia de Lange Syndrome, ‘They avoid us like the plague’

“‘Termination should be strongly considered,’ was rubbed into my face. For 2 weeks after his birth, no one but myself and my husband were allowed to see Preston due to isolation. Our 2-year-old daughter wasn’t allowed to meet her new little brother. I didn’t ever go a day without having hope.”

‘You can terminate the pregnancy or wait for the baby’s heart to be crushed.’ I feared being judged by friends and family for deciding to save my life.’: Woman births rainbow baby after painful decision to abort dying son, ‘He was suffocating’

“It was the day of my first stomach ultrasound. The doctor was quiet. He ended with, ‘I’m getting you in with the doctor’s downstairs soon,’ and walked out. I thought they were going to tell me the gender. I was so naive. ‘Madi, we aren’t here to find out the gender. We’re here because your doctor thinks your baby is dying.’ I bawled. I was handed a sticky note with a phone number for an abortion clinic. It was a matter of time before my body started breaking down.”

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