Hypermobile Ehlers-Danlos Syndrome

‘There’s nothing we can do.’ I felt my hopes and dreams slip away. My life was falling apart and nobody could tell me why.’: Woman diagnosed with Ehlers-Danlos Syndrome, ‘I’ll never stop fighting’

“My body’s injustice and betrayal would send me fleeing to a quiet place where I wouldn’t be discovered by my kids. I’d hide in my closet, trying my hardest to muffle my crying. As the tears fell from my cheeks and were washed away, I’d wish they were carrying the sickness out of me.”

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