IBD

‘Every morning I trudged, syringe in hand, to get stabbed in the abdomen on an exam table while my classmates grabbed Starbucks. I began silently screaming, ‘Why me?’: 19-year old diagnosed with IBD, ulcerative colitis advocates for change

“I was warned about the freshman year dorm life and told where to go for mental health counseling if exams became too stressful. I was not told what to do, how to continue, or who to turn to if I was suddenly forever ill.”

‘No cure? Like forever?’ I’ve been shot in a drive-by shooting, and I’d still take that pain over Crohn’s. I was so angry.’: Young woman learns to live with invisible illness, ‘It’s not the end of the world if you have to pull over, or ruin a pair of pants’

“Suddenly I could not keep any food inside of me, from either end. I was losing weight fast. The weather was nice so my boyfriend and I went to a restaurant on the waterfront for dinner. Afterwards, he took the long, scenic way home. I was in intense pain and needed to get to a bathroom. We finally arrive and he insisted on walking me to the door, not realizing I was ready to sprint. The minute I shut the door behind me, I projectile vomited all over the entryway. I became a homebody. I was accused of things like, ‘You just want pity. You’re lazy.’”

‘Doctors: Don’t expect him to crawl, walk, or walk. Cash: Hold my sippy cup. Watch this.’: Mom feels ‘lucky’ to parent son with Down syndrome, ‘he has taught us all to love wholeheartedly’

“The doctor was cold, rude, and uncomfortable. He ignored my husband every time he tried to speak and suggested we ‘put him up for adoption.’ Yet, NO ONE agreed he had Down Syndrome. We looked at his little almond-shaped eyes and back at each other and just KNEW. Our lives didn’t ‘fall apart.’ We didn’t ‘mourn’ the loss of a ‘perfect’ baby. We were just so in love.”

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