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‘Every time I gave birth, I awoke the dormant beasts inside me.’: Mom of 3 shares journey to Ehlers Danlos Syndrome, Lupus diagnoses

“I started wearing sunglasses indoors. My hair was falling out in chunks, my gums bleeding. Sounds hurt. The very smell of air made me sick. I was a shell of myself, withering away, barely hanging on. But then I thought of my little girl. She was so small, not even talking yet. How would she remember me? Who would teach her to do her hair? I had to stop planning my goodbyes, and start fighting.”

‘My boyfriend who ‘loved me’ broke up with me over the phone once I was in the hospital. My health deteriorated at lightning speed.’: Woman details journey with Crohn’s Disease, ‘You can rise above and flourish’

“I went from being a perfectly healthy 21-year-old with the world by the tail to 105-degree fevers every day. One day, my mom found me lying on the couch at dinner time in my pajamas from the night before. ‘It’s time to get to the bottom of this.’ Something wasn’t right, but we couldn’t put our fingers on it.”

‘What’s that? It could be something sinister. You might have a tumor.’ I got fired for being ill.’: Young woman diagnosed with Ehlers Danlos Syndrome after countless tests, ‘I was getting sicker and sicker, but with no answers’

“I was sobbing in bed one night angry at God. ‘Why won’t you take the pain away?!’ I had worked so hard despite being unwell, pushing myself to achieve. I got the grades to study music, my true passion, but was too unwell to go! I was gutted. The emergency doctor uttered the word ‘stroke.’ I was in disbelief. I was only 19 years old.”

‘Two months before college graduation, my symptoms returned. The bloat, the blood, stomach pain, and fatigue.’: Young woman diagnosed with severe Ulcerative Colitis, ‘I felt I would never get my life back, now I embrace it all’

“‘Natalie. He died.’ I can still remember it like yesterday. Being woken up in my freshman year dorm from a call. All I remember next is screaming, ‘No, no, no, no, no!’ Dead. Died. Gone. As time went on, I started feeling sick. Very sick.”

‘They found something. I don’t want to ruin your Christmas Eve.’ I sat with my head against the closet, ruined.’: Woman loses husband to Stage 4 Stomach Cancer after multiple misdiagnoses, claims his death ‘saved 3 family members, daughters’

“I remember sitting there with my head against the closet thinking my Christmas Eve was already ruined without him there. I remember the tears started streaming down my face even though I tried to keep it together for him and the girls. My older daughter came over and wrapped her arms around my neck because she could tell I was upset.”

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