IBS

‘What’s that? It could be something sinister. You might have a tumor.’ I got fired for being ill.’: Young woman diagnosed with Ehlers Danlos Syndrome after countless tests, ‘I was getting sicker and sicker, but with no answers’

“I was sobbing in bed one night angry at God. ‘Why won’t you take the pain away?!’ I had worked so hard despite being unwell, pushing myself to achieve. I got the grades to study music, my true passion, but was too unwell to go! I was gutted. The emergency doctor uttered the word ‘stroke.’ I was in disbelief. I was only 19 years old.”

‘Two months before college graduation, my symptoms returned. The bloat, the blood, stomach pain, and fatigue.’: Young woman diagnosed with severe Ulcerative Colitis, ‘I felt I would never get my life back, now I embrace it all’

“‘Natalie. He died.’ I can still remember it like yesterday. Being woken up in my freshman year dorm from a call. All I remember next is screaming, ‘No, no, no, no, no!’ Dead. Died. Gone. As time went on, I started feeling sick. Very sick.”

‘They found something. I don’t want to ruin your Christmas Eve.’ I sat with my head against the closet, ruined.’: Woman loses husband to Stage 4 Stomach Cancer after multiple misdiagnoses, claims his death ‘saved 3 family members, daughters’

“I remember sitting there with my head against the closet thinking my Christmas Eve was already ruined without him there. I remember the tears started streaming down my face even though I tried to keep it together for him and the girls. My older daughter came over and wrapped her arms around my neck because she could tell I was upset.”

‘School was torture. People made fun of me for ‘going to the bathroom too much.’ They thought I was anorexic. The doctor tried to dismiss me, telling me I had nothing but the stomach flu.’ Woman diagnosed with Intussusception, or severe intestinal problems, hopes to warn others

“I noticed my husband and mother exchange a very worried look. He told me this was likely the cause of all my problems since I was 4 years old. He also decided it was a good idea to tell me his last patient with this condition died.”

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